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A meta-synthesis on parenting a child with autism

BACKGROUND: The lifelong nature of autism in a child has deep implications on parents as they are faced with a range of challenges and emotional consequences in raising the child. The aim of this meta-synthesis was to explore the perspectives of parents in raising a child with autism in the childhoo...

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Autores principales: Ooi, Khim Lynn, Ong, Yin Sin, Jacob, Sabrina Anne, Khan, Tahir Mehmood
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Dove Medical Press 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4827600/
https://www.ncbi.nlm.nih.gov/pubmed/27103804
http://dx.doi.org/10.2147/NDT.S100634
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author Ooi, Khim Lynn
Ong, Yin Sin
Jacob, Sabrina Anne
Khan, Tahir Mehmood
author_facet Ooi, Khim Lynn
Ong, Yin Sin
Jacob, Sabrina Anne
Khan, Tahir Mehmood
author_sort Ooi, Khim Lynn
collection PubMed
description BACKGROUND: The lifelong nature of autism in a child has deep implications on parents as they are faced with a range of challenges and emotional consequences in raising the child. The aim of this meta-synthesis was to explore the perspectives of parents in raising a child with autism in the childhood period to gain an insight of the adaptations and beliefs of parents toward autism, their family and social experiences, as well as their perceptions toward health and educational services. METHODS: A systematic search of six databases (PubMed, EMBASE, PsychInfo, Cochrane Central Register of Controlled Trials, Cochrane Database of Systematic Reviews, and Database of Abstracts of Reviews of Effects [DARE]) was conducted from inception up to September 30, 2014. Full-text English articles of qualitative studies describing parents’ perceptions relating to the care of children younger than 12 years of age and diagnosed with a sole disorder of autism were included. RESULTS: A total of 50 eligible articles were appraised and analyzed, identifying four core themes encompassing all thoughts, emotions, and experiences commonly expressed by parents: 1) The Parent, 2) Impact on the Family, 3) Social Impact, and 4) Health and Educational Services. Findings revealed that parents who have a child with autism experienced multiple challenges in different aspects of care, impacting on parents’ stress and adaptation. CONCLUSION: Health care provision should be family centered, addressing and supporting the needs of the whole family and not just the affected child, to ensure the family’s well-being and quality of life in the face of a diagnosis of autism.
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spelling pubmed-48276002016-04-21 A meta-synthesis on parenting a child with autism Ooi, Khim Lynn Ong, Yin Sin Jacob, Sabrina Anne Khan, Tahir Mehmood Neuropsychiatr Dis Treat Original Research BACKGROUND: The lifelong nature of autism in a child has deep implications on parents as they are faced with a range of challenges and emotional consequences in raising the child. The aim of this meta-synthesis was to explore the perspectives of parents in raising a child with autism in the childhood period to gain an insight of the adaptations and beliefs of parents toward autism, their family and social experiences, as well as their perceptions toward health and educational services. METHODS: A systematic search of six databases (PubMed, EMBASE, PsychInfo, Cochrane Central Register of Controlled Trials, Cochrane Database of Systematic Reviews, and Database of Abstracts of Reviews of Effects [DARE]) was conducted from inception up to September 30, 2014. Full-text English articles of qualitative studies describing parents’ perceptions relating to the care of children younger than 12 years of age and diagnosed with a sole disorder of autism were included. RESULTS: A total of 50 eligible articles were appraised and analyzed, identifying four core themes encompassing all thoughts, emotions, and experiences commonly expressed by parents: 1) The Parent, 2) Impact on the Family, 3) Social Impact, and 4) Health and Educational Services. Findings revealed that parents who have a child with autism experienced multiple challenges in different aspects of care, impacting on parents’ stress and adaptation. CONCLUSION: Health care provision should be family centered, addressing and supporting the needs of the whole family and not just the affected child, to ensure the family’s well-being and quality of life in the face of a diagnosis of autism. Dove Medical Press 2016-04-05 /pmc/articles/PMC4827600/ /pubmed/27103804 http://dx.doi.org/10.2147/NDT.S100634 Text en © 2016 Ooi et al. This work is published and licensed by Dove Medical Press Limited The full terms of this license are available at https://www.dovepress.com/terms.php and incorporate the Creative Commons Attribution – Non Commercial (unported, v3.0) License (http://creativecommons.org/licenses/by-nc/3.0/). By accessing the work you hereby accept the Terms. Non-commercial uses of the work are permitted without any further permission from Dove Medical Press Limited, provided the work is properly attributed.
spellingShingle Original Research
Ooi, Khim Lynn
Ong, Yin Sin
Jacob, Sabrina Anne
Khan, Tahir Mehmood
A meta-synthesis on parenting a child with autism
title A meta-synthesis on parenting a child with autism
title_full A meta-synthesis on parenting a child with autism
title_fullStr A meta-synthesis on parenting a child with autism
title_full_unstemmed A meta-synthesis on parenting a child with autism
title_short A meta-synthesis on parenting a child with autism
title_sort meta-synthesis on parenting a child with autism
topic Original Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4827600/
https://www.ncbi.nlm.nih.gov/pubmed/27103804
http://dx.doi.org/10.2147/NDT.S100634
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