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The first meeting of the European Register of Cystic Echinococcosis (ERCE)

Cystic echinococcosis (CE) is a zoonotic parasitic disease endemic in southern and eastern European countries. The true prevalence of CE is difficult to estimate due to the high proportion of asymptomatic carriers who never seek medical attention and to the underreporting of diagnosed cases, factors...

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Autores principales: Rossi, Patrizia, Tamarozzi, Francesca, Galati, Fabio, Pozio, Edoardo, Akhan, Okan, Cretu, Carmen Michaela, Vutova, Kamenna, Siles-Lucas, Mar, Brunetti, Enrico, Casulli, Adriano
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4850717/
https://www.ncbi.nlm.nih.gov/pubmed/27126135
http://dx.doi.org/10.1186/s13071-016-1532-3
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author Rossi, Patrizia
Tamarozzi, Francesca
Galati, Fabio
Pozio, Edoardo
Akhan, Okan
Cretu, Carmen Michaela
Vutova, Kamenna
Siles-Lucas, Mar
Brunetti, Enrico
Casulli, Adriano
author_facet Rossi, Patrizia
Tamarozzi, Francesca
Galati, Fabio
Pozio, Edoardo
Akhan, Okan
Cretu, Carmen Michaela
Vutova, Kamenna
Siles-Lucas, Mar
Brunetti, Enrico
Casulli, Adriano
author_sort Rossi, Patrizia
collection PubMed
description Cystic echinococcosis (CE) is a zoonotic parasitic disease endemic in southern and eastern European countries. The true prevalence of CE is difficult to estimate due to the high proportion of asymptomatic carriers who never seek medical attention and to the underreporting of diagnosed cases, factors which contribute to its neglected status. In an attempt to improve this situation, the European Register of Cystic Echinococcosis (ERCE), was launched in October 2014 in the context of the HERACLES project. ERCE is a prospective, observational, multicentre register of patients with probable or confirmed CE. The first ERCE meeting was held in November 2015 at the Italian National Institute of Health (Istituto Superiore di Sanita, ISS) in Rome, to bring together CE experts currently involved in the Register activities, to share and discuss experiences, and future developments. Although the Register is still in its infancy, data collected at the time of writing this report, had outnumbered the total of national cases reported by the European endemic countries and published by the European Centre for Disease Prevention and Control in 2015. This confirms the need for an improved reporting system of CE at the European level. The collection of standardized clinical data and samples is expected to support a more rational, stage-specific approach to clinical management, and to help public authorities harmonize reporting of CE. A better understanding of CE burden in Europe will encourage the planning and implementation of public health policies toward its control.
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spelling pubmed-48507172016-04-30 The first meeting of the European Register of Cystic Echinococcosis (ERCE) Rossi, Patrizia Tamarozzi, Francesca Galati, Fabio Pozio, Edoardo Akhan, Okan Cretu, Carmen Michaela Vutova, Kamenna Siles-Lucas, Mar Brunetti, Enrico Casulli, Adriano Parasit Vectors Meeting Report Cystic echinococcosis (CE) is a zoonotic parasitic disease endemic in southern and eastern European countries. The true prevalence of CE is difficult to estimate due to the high proportion of asymptomatic carriers who never seek medical attention and to the underreporting of diagnosed cases, factors which contribute to its neglected status. In an attempt to improve this situation, the European Register of Cystic Echinococcosis (ERCE), was launched in October 2014 in the context of the HERACLES project. ERCE is a prospective, observational, multicentre register of patients with probable or confirmed CE. The first ERCE meeting was held in November 2015 at the Italian National Institute of Health (Istituto Superiore di Sanita, ISS) in Rome, to bring together CE experts currently involved in the Register activities, to share and discuss experiences, and future developments. Although the Register is still in its infancy, data collected at the time of writing this report, had outnumbered the total of national cases reported by the European endemic countries and published by the European Centre for Disease Prevention and Control in 2015. This confirms the need for an improved reporting system of CE at the European level. The collection of standardized clinical data and samples is expected to support a more rational, stage-specific approach to clinical management, and to help public authorities harmonize reporting of CE. A better understanding of CE burden in Europe will encourage the planning and implementation of public health policies toward its control. BioMed Central 2016-04-28 /pmc/articles/PMC4850717/ /pubmed/27126135 http://dx.doi.org/10.1186/s13071-016-1532-3 Text en © Rossi et al. 2016 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Meeting Report
Rossi, Patrizia
Tamarozzi, Francesca
Galati, Fabio
Pozio, Edoardo
Akhan, Okan
Cretu, Carmen Michaela
Vutova, Kamenna
Siles-Lucas, Mar
Brunetti, Enrico
Casulli, Adriano
The first meeting of the European Register of Cystic Echinococcosis (ERCE)
title The first meeting of the European Register of Cystic Echinococcosis (ERCE)
title_full The first meeting of the European Register of Cystic Echinococcosis (ERCE)
title_fullStr The first meeting of the European Register of Cystic Echinococcosis (ERCE)
title_full_unstemmed The first meeting of the European Register of Cystic Echinococcosis (ERCE)
title_short The first meeting of the European Register of Cystic Echinococcosis (ERCE)
title_sort first meeting of the european register of cystic echinococcosis (erce)
topic Meeting Report
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4850717/
https://www.ncbi.nlm.nih.gov/pubmed/27126135
http://dx.doi.org/10.1186/s13071-016-1532-3
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