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‘Life is still worth living’: a pilot exploration of self-reported resources of palliative care patients

BACKGROUND: Facing a terminal illness can be highly stressful and palliative care patients frequently suffer from mood symptoms. The focus of health care is often on treating symptoms whereas health-promoting factors receive less attention. The aim of this study was to explore the views of palliativ...

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Autores principales: Warmenhoven, Franca, Lucassen, Peter, Vermandere, Mieke, Aertgeerts, Bert, van Weel, Chris, Vissers, Kris, Prins, Judith
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4862164/
https://www.ncbi.nlm.nih.gov/pubmed/27164989
http://dx.doi.org/10.1186/s12875-016-0450-y
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author Warmenhoven, Franca
Lucassen, Peter
Vermandere, Mieke
Aertgeerts, Bert
van Weel, Chris
Vissers, Kris
Prins, Judith
author_facet Warmenhoven, Franca
Lucassen, Peter
Vermandere, Mieke
Aertgeerts, Bert
van Weel, Chris
Vissers, Kris
Prins, Judith
author_sort Warmenhoven, Franca
collection PubMed
description BACKGROUND: Facing a terminal illness can be highly stressful and palliative care patients frequently suffer from mood symptoms. The focus of health care is often on treating symptoms whereas health-promoting factors receive less attention. The aim of this study was to explore the views of palliative care patients on resources and ways of coping that help them prevent or manage mood symptoms. METHODS: A pilot qualitative study was performed through face-to-face semi-structured interviews with fifteen ambulant patients with advanced cancer. The interviews were transcribed verbatim and qualitative analysis was performed independently by two researchers, according to the principle of constant comparative analysis. RESULTS: Patients reported on attitudes and specific coping strategies that they found helpful, as well as aspects of their life narrative and spirituality. Resources were found in meaningful contacts with family and friends and in personal attention of professional medical caregivers for their wellbeing. CONCLUSIONS: We conclude that palliative care patients could identify resources to cope with mood symptoms in the context of their unique life. In helping patients to identify the personal resources that are accessible and available in their specific context, patient autonomy in enhancing resilience could be increased.
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spelling pubmed-48621642016-05-11 ‘Life is still worth living’: a pilot exploration of self-reported resources of palliative care patients Warmenhoven, Franca Lucassen, Peter Vermandere, Mieke Aertgeerts, Bert van Weel, Chris Vissers, Kris Prins, Judith BMC Fam Pract Research Article BACKGROUND: Facing a terminal illness can be highly stressful and palliative care patients frequently suffer from mood symptoms. The focus of health care is often on treating symptoms whereas health-promoting factors receive less attention. The aim of this study was to explore the views of palliative care patients on resources and ways of coping that help them prevent or manage mood symptoms. METHODS: A pilot qualitative study was performed through face-to-face semi-structured interviews with fifteen ambulant patients with advanced cancer. The interviews were transcribed verbatim and qualitative analysis was performed independently by two researchers, according to the principle of constant comparative analysis. RESULTS: Patients reported on attitudes and specific coping strategies that they found helpful, as well as aspects of their life narrative and spirituality. Resources were found in meaningful contacts with family and friends and in personal attention of professional medical caregivers for their wellbeing. CONCLUSIONS: We conclude that palliative care patients could identify resources to cope with mood symptoms in the context of their unique life. In helping patients to identify the personal resources that are accessible and available in their specific context, patient autonomy in enhancing resilience could be increased. BioMed Central 2016-05-10 /pmc/articles/PMC4862164/ /pubmed/27164989 http://dx.doi.org/10.1186/s12875-016-0450-y Text en © Warmenhoven et al. 2016 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research Article
Warmenhoven, Franca
Lucassen, Peter
Vermandere, Mieke
Aertgeerts, Bert
van Weel, Chris
Vissers, Kris
Prins, Judith
‘Life is still worth living’: a pilot exploration of self-reported resources of palliative care patients
title ‘Life is still worth living’: a pilot exploration of self-reported resources of palliative care patients
title_full ‘Life is still worth living’: a pilot exploration of self-reported resources of palliative care patients
title_fullStr ‘Life is still worth living’: a pilot exploration of self-reported resources of palliative care patients
title_full_unstemmed ‘Life is still worth living’: a pilot exploration of self-reported resources of palliative care patients
title_short ‘Life is still worth living’: a pilot exploration of self-reported resources of palliative care patients
title_sort ‘life is still worth living’: a pilot exploration of self-reported resources of palliative care patients
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4862164/
https://www.ncbi.nlm.nih.gov/pubmed/27164989
http://dx.doi.org/10.1186/s12875-016-0450-y
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