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“You hoped we would sleep walk into accepting the collection of our data”: controversies surrounding the UK care.data scheme and their wider relevance for biomedical research
An ‘Information Centre’ has recently been established by law which has the power to collect, collate and provide access to the medical information forall patients treated by the National Health Service in England, whether in hospitals or by General Practitioners. This so-called ‘care.data’ scheme ha...
Autores principales: | Sterckx, Sigrid, Rakic, Vojin, Cockbain, Julian, Borry, Pascal |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer Netherlands
2015
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4880636/ https://www.ncbi.nlm.nih.gov/pubmed/26280642 http://dx.doi.org/10.1007/s11019-015-9661-6 |
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