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Anticipated stigma and blameless guilt: Mothers' evaluation of life with the sex-linked disorder, hypohidrotic ectodermal dysplasia (XHED)
Practical experience of a genetic disorder may influence how parents approach reproduction, if they know their child may be affected by an inherited condition. One important aspect of this practical experience is the stigmatisation which family members may experience or witness. We outline the conce...
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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Pergamon
2016
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| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4884667/ https://www.ncbi.nlm.nih.gov/pubmed/27140840 http://dx.doi.org/10.1016/j.socscimed.2016.04.027 |