To share or not to share is the question

Data sharing is increasingly becoming an essential component of clinical practice and biomedical research. The debate has shifted from whether or not to exchange data to how best to achieve optimal sharing. This raises new ethical and legal challenges, particularly with regard to consent and privacy...

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Detalles Bibliográficos
Autores principales: Chalmers, Donald R.C., Nicol, Dianne, Otlowski, Margaret F.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2014
Materias:
Review
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4888832/
https://www.ncbi.nlm.nih.gov/pubmed/27294026
http://dx.doi.org/10.1016/j.atg.2014.09.011
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author Chalmers, Donald R.C.
Nicol, Dianne
Otlowski, Margaret F.
author_facet Chalmers, Donald R.C.
Nicol, Dianne
Otlowski, Margaret F.
author_sort Chalmers, Donald R.C.
collection PubMed
description Data sharing is increasingly becoming an essential component of clinical practice and biomedical research. The debate has shifted from whether or not to exchange data to how best to achieve optimal sharing. This raises new ethical and legal challenges, particularly with regard to consent and privacy. This article discusses recent developments in the formulation of best practice guidelines for data sharing. Particular attention is focused on the Global Alliance for Genomics and Health (GA4GH) draft Framework of Conduct for Data Sharing.
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spelling pubmed-48888322016-06-10 To share or not to share is the question Chalmers, Donald R.C. Nicol, Dianne Otlowski, Margaret F. Appl Transl Genom Review Data sharing is increasingly becoming an essential component of clinical practice and biomedical research. The debate has shifted from whether or not to exchange data to how best to achieve optimal sharing. This raises new ethical and legal challenges, particularly with regard to consent and privacy. This article discusses recent developments in the formulation of best practice guidelines for data sharing. Particular attention is focused on the Global Alliance for Genomics and Health (GA4GH) draft Framework of Conduct for Data Sharing. Elsevier 2014-09-18 /pmc/articles/PMC4888832/ /pubmed/27294026 http://dx.doi.org/10.1016/j.atg.2014.09.011 Text en © 2014 Published by Elsevier B.V. http://creativecommons.org/licenses/by-nc-nd/3.0/ This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/3.0/).
spellingShingle Review
Chalmers, Donald R.C.
Nicol, Dianne
Otlowski, Margaret F.
To share or not to share is the question
title To share or not to share is the question
title_full To share or not to share is the question
title_fullStr To share or not to share is the question
title_full_unstemmed To share or not to share is the question
title_short To share or not to share is the question
title_sort to share or not to share is the question
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4888832/
https://www.ncbi.nlm.nih.gov/pubmed/27294026
http://dx.doi.org/10.1016/j.atg.2014.09.011
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