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Perspectives of People Living with HIV on Access to Health Care: Protocol for a Scoping Review

BACKGROUND: Strategies to improve access to health care for people living with human immunodeficiency virus (PLHIV) have demonstrated limited success. Whereas previous approaches have been informed by the views of health providers and decision-makers, it is believed that incorporating patient perspe...

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Autores principales: Asghari, Shabnam, Maybank, Allison, Hurley, Oliver, Modir, Hilary, Farrell, Alison, Marshall, Zack, Kendall, Claire, Johnston, Sharon, Hogel, Matthew, Rourke, Sean B, Liddy, Clare
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications Inc. 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4889870/
https://www.ncbi.nlm.nih.gov/pubmed/27193076
http://dx.doi.org/10.2196/resprot.5263
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author Asghari, Shabnam
Maybank, Allison
Hurley, Oliver
Modir, Hilary
Farrell, Alison
Marshall, Zack
Kendall, Claire
Johnston, Sharon
Hogel, Matthew
Rourke, Sean B
Liddy, Clare
author_facet Asghari, Shabnam
Maybank, Allison
Hurley, Oliver
Modir, Hilary
Farrell, Alison
Marshall, Zack
Kendall, Claire
Johnston, Sharon
Hogel, Matthew
Rourke, Sean B
Liddy, Clare
author_sort Asghari, Shabnam
collection PubMed
description BACKGROUND: Strategies to improve access to health care for people living with human immunodeficiency virus (PLHIV) have demonstrated limited success. Whereas previous approaches have been informed by the views of health providers and decision-makers, it is believed that incorporating patient perspectives into the design and evaluations of health care programs will lead to improved access to health care services. OBJECTIVE: We aim to map the literature on the perspectives of PLHIV concerning access to health care services, to identify gaps in evidence, and to produce an evidence-informed research action plan to guide the Living with HIV program of research. METHODS: This scoping review includes peer-reviewed and grey literature from 1946 to May 2014 using double data extraction. Variations of the search terms “HIV”, “patient satisfaction”, and “health services accessibility” are used to identify relevant literature. The search strategy is being developed in consultation with content experts, review methodologists, and a librarian, and validated using gold standard studies identified by those stakeholders. The inclusion criteria are (1) the study includes the perspectives of PLHIV, (2) study design includes qualitative, quantitative, or mixed methods, and (3) outcome measures are limited to patient satisfaction, their implied needs, beliefs, and desires in relation to access to health care. The papers are extracted by two independent reviewers, including quality assessment. Data is then collated, summarized, and thematically analyzed. RESULTS: A total of 12,857 references were retrieved, of which 326 documents were identified as eligible in pre-screening, and 64 articles met the inclusion criteria (56% qualitative studies, 38% quantitative studies and 6% mixed-method studies). Only four studies were conducted in Canada. Data synthesis is in progress and full results are expected in June, 2016. CONCLUSIONS: This scoping review will record and characterize the extensive body of literature on perspectives of PLHIV regarding access to health care. A literature repository will be developed to assist stakeholders, decision-makers, and PLHIV in developing and implementing patient-oriented health care programs.
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spelling pubmed-48898702016-06-13 Perspectives of People Living with HIV on Access to Health Care: Protocol for a Scoping Review Asghari, Shabnam Maybank, Allison Hurley, Oliver Modir, Hilary Farrell, Alison Marshall, Zack Kendall, Claire Johnston, Sharon Hogel, Matthew Rourke, Sean B Liddy, Clare JMIR Res Protoc Protocol BACKGROUND: Strategies to improve access to health care for people living with human immunodeficiency virus (PLHIV) have demonstrated limited success. Whereas previous approaches have been informed by the views of health providers and decision-makers, it is believed that incorporating patient perspectives into the design and evaluations of health care programs will lead to improved access to health care services. OBJECTIVE: We aim to map the literature on the perspectives of PLHIV concerning access to health care services, to identify gaps in evidence, and to produce an evidence-informed research action plan to guide the Living with HIV program of research. METHODS: This scoping review includes peer-reviewed and grey literature from 1946 to May 2014 using double data extraction. Variations of the search terms “HIV”, “patient satisfaction”, and “health services accessibility” are used to identify relevant literature. The search strategy is being developed in consultation with content experts, review methodologists, and a librarian, and validated using gold standard studies identified by those stakeholders. The inclusion criteria are (1) the study includes the perspectives of PLHIV, (2) study design includes qualitative, quantitative, or mixed methods, and (3) outcome measures are limited to patient satisfaction, their implied needs, beliefs, and desires in relation to access to health care. The papers are extracted by two independent reviewers, including quality assessment. Data is then collated, summarized, and thematically analyzed. RESULTS: A total of 12,857 references were retrieved, of which 326 documents were identified as eligible in pre-screening, and 64 articles met the inclusion criteria (56% qualitative studies, 38% quantitative studies and 6% mixed-method studies). Only four studies were conducted in Canada. Data synthesis is in progress and full results are expected in June, 2016. CONCLUSIONS: This scoping review will record and characterize the extensive body of literature on perspectives of PLHIV regarding access to health care. A literature repository will be developed to assist stakeholders, decision-makers, and PLHIV in developing and implementing patient-oriented health care programs. JMIR Publications Inc. 2016-05-18 /pmc/articles/PMC4889870/ /pubmed/27193076 http://dx.doi.org/10.2196/resprot.5263 Text en ©Shabnam Asghari, Allison Maybank, Oliver Hurley, Hilary Modir, Alison Farrell, Zack Marshall, Claire Kendall, Sharon Johnston, Matthew Hogel, Sean B Rourke, Clare Liddy. Originally published in JMIR Research Protocols (http://www.researchprotocols.org), 18.05.2016. https://creativecommons.org/licenses/by/2.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0/ (https://creativecommons.org/licenses/by/2.0/) ), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Research Protocols, is properly cited. The complete bibliographic information, a link to the original publication on http://www.researchprotocols.org, as well as this copyright and license information must be included.
spellingShingle Protocol
Asghari, Shabnam
Maybank, Allison
Hurley, Oliver
Modir, Hilary
Farrell, Alison
Marshall, Zack
Kendall, Claire
Johnston, Sharon
Hogel, Matthew
Rourke, Sean B
Liddy, Clare
Perspectives of People Living with HIV on Access to Health Care: Protocol for a Scoping Review
title Perspectives of People Living with HIV on Access to Health Care: Protocol for a Scoping Review
title_full Perspectives of People Living with HIV on Access to Health Care: Protocol for a Scoping Review
title_fullStr Perspectives of People Living with HIV on Access to Health Care: Protocol for a Scoping Review
title_full_unstemmed Perspectives of People Living with HIV on Access to Health Care: Protocol for a Scoping Review
title_short Perspectives of People Living with HIV on Access to Health Care: Protocol for a Scoping Review
title_sort perspectives of people living with hiv on access to health care: protocol for a scoping review
topic Protocol
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4889870/
https://www.ncbi.nlm.nih.gov/pubmed/27193076
http://dx.doi.org/10.2196/resprot.5263
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