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Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide

Most research into the epidemiology, etiology, clinical manifestations, diagnosis and treatment of autism is based on studies in high income countries. Moreover, within high income countries, individuals of high socioeconomic status are disproportionately represented among participants in autism res...

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Autores principales: Durkin, Maureen S., Elsabbagh, Mayada, Barbaro, Josephine, Gladstone, Melissa, Happe, Francesca, Hoekstra, Rosa A., Lee, Li‐Ching, Rattazzi, Alexia, Stapel‐Wax, Jennifer, Stone, Wendy L., Tager‐Flusberg, Helen, Thurm, Audrey, Tomlinson, Mark, Shih, Andy
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2015
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4901137/
https://www.ncbi.nlm.nih.gov/pubmed/26437907
http://dx.doi.org/10.1002/aur.1575
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author Durkin, Maureen S.
Elsabbagh, Mayada
Barbaro, Josephine
Gladstone, Melissa
Happe, Francesca
Hoekstra, Rosa A.
Lee, Li‐Ching
Rattazzi, Alexia
Stapel‐Wax, Jennifer
Stone, Wendy L.
Tager‐Flusberg, Helen
Thurm, Audrey
Tomlinson, Mark
Shih, Andy
author_facet Durkin, Maureen S.
Elsabbagh, Mayada
Barbaro, Josephine
Gladstone, Melissa
Happe, Francesca
Hoekstra, Rosa A.
Lee, Li‐Ching
Rattazzi, Alexia
Stapel‐Wax, Jennifer
Stone, Wendy L.
Tager‐Flusberg, Helen
Thurm, Audrey
Tomlinson, Mark
Shih, Andy
author_sort Durkin, Maureen S.
collection PubMed
description Most research into the epidemiology, etiology, clinical manifestations, diagnosis and treatment of autism is based on studies in high income countries. Moreover, within high income countries, individuals of high socioeconomic status are disproportionately represented among participants in autism research. Corresponding disparities in access to autism screening, diagnosis, and treatment exist globally. One of the barriers perpetuating this imbalance is the high cost of proprietary tools for diagnosing autism and for delivering evidence‐based therapies. Another barrier is the high cost of training of professionals and para‐professionals to use the tools. Open‐source and open access models provide a way to facilitate global collaboration and training. Using these models and technologies, the autism scientific community and clinicians worldwide should be able to work more effectively and efficiently than they have to date to address the global imbalance in autism knowledge and at the same time advance our understanding of autism and our ability to deliver cost‐effective services to everyone in need. Autism Res 2015, 8: 473–476. © 2015 International Society for Autism Research, Wiley Periodicals, Inc.
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spelling pubmed-49011372016-06-10 Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide Durkin, Maureen S. Elsabbagh, Mayada Barbaro, Josephine Gladstone, Melissa Happe, Francesca Hoekstra, Rosa A. Lee, Li‐Ching Rattazzi, Alexia Stapel‐Wax, Jennifer Stone, Wendy L. Tager‐Flusberg, Helen Thurm, Audrey Tomlinson, Mark Shih, Andy Autism Res Commentary Most research into the epidemiology, etiology, clinical manifestations, diagnosis and treatment of autism is based on studies in high income countries. Moreover, within high income countries, individuals of high socioeconomic status are disproportionately represented among participants in autism research. Corresponding disparities in access to autism screening, diagnosis, and treatment exist globally. One of the barriers perpetuating this imbalance is the high cost of proprietary tools for diagnosing autism and for delivering evidence‐based therapies. Another barrier is the high cost of training of professionals and para‐professionals to use the tools. Open‐source and open access models provide a way to facilitate global collaboration and training. Using these models and technologies, the autism scientific community and clinicians worldwide should be able to work more effectively and efficiently than they have to date to address the global imbalance in autism knowledge and at the same time advance our understanding of autism and our ability to deliver cost‐effective services to everyone in need. Autism Res 2015, 8: 473–476. © 2015 International Society for Autism Research, Wiley Periodicals, Inc. John Wiley and Sons Inc. 2015-10 2015-10-06 /pmc/articles/PMC4901137/ /pubmed/26437907 http://dx.doi.org/10.1002/aur.1575 Text en © 2015 The Authors Autism Research published by Wiley Periodicals, Inc. on behalf of International Society for Autism Research This is an open access article under the terms of the Creative Commons Attribution (http://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Commentary
Durkin, Maureen S.
Elsabbagh, Mayada
Barbaro, Josephine
Gladstone, Melissa
Happe, Francesca
Hoekstra, Rosa A.
Lee, Li‐Ching
Rattazzi, Alexia
Stapel‐Wax, Jennifer
Stone, Wendy L.
Tager‐Flusberg, Helen
Thurm, Audrey
Tomlinson, Mark
Shih, Andy
Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide
title Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide
title_full Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide
title_fullStr Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide
title_full_unstemmed Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide
title_short Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide
title_sort autism screening and diagnosis in low resource settings: challenges and opportunities to enhance research and services worldwide
topic Commentary
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4901137/
https://www.ncbi.nlm.nih.gov/pubmed/26437907
http://dx.doi.org/10.1002/aur.1575
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