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Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide
Most research into the epidemiology, etiology, clinical manifestations, diagnosis and treatment of autism is based on studies in high income countries. Moreover, within high income countries, individuals of high socioeconomic status are disproportionately represented among participants in autism res...
Autores principales: | , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2015
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4901137/ https://www.ncbi.nlm.nih.gov/pubmed/26437907 http://dx.doi.org/10.1002/aur.1575 |
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author | Durkin, Maureen S. Elsabbagh, Mayada Barbaro, Josephine Gladstone, Melissa Happe, Francesca Hoekstra, Rosa A. Lee, Li‐Ching Rattazzi, Alexia Stapel‐Wax, Jennifer Stone, Wendy L. Tager‐Flusberg, Helen Thurm, Audrey Tomlinson, Mark Shih, Andy |
author_facet | Durkin, Maureen S. Elsabbagh, Mayada Barbaro, Josephine Gladstone, Melissa Happe, Francesca Hoekstra, Rosa A. Lee, Li‐Ching Rattazzi, Alexia Stapel‐Wax, Jennifer Stone, Wendy L. Tager‐Flusberg, Helen Thurm, Audrey Tomlinson, Mark Shih, Andy |
author_sort | Durkin, Maureen S. |
collection | PubMed |
description | Most research into the epidemiology, etiology, clinical manifestations, diagnosis and treatment of autism is based on studies in high income countries. Moreover, within high income countries, individuals of high socioeconomic status are disproportionately represented among participants in autism research. Corresponding disparities in access to autism screening, diagnosis, and treatment exist globally. One of the barriers perpetuating this imbalance is the high cost of proprietary tools for diagnosing autism and for delivering evidence‐based therapies. Another barrier is the high cost of training of professionals and para‐professionals to use the tools. Open‐source and open access models provide a way to facilitate global collaboration and training. Using these models and technologies, the autism scientific community and clinicians worldwide should be able to work more effectively and efficiently than they have to date to address the global imbalance in autism knowledge and at the same time advance our understanding of autism and our ability to deliver cost‐effective services to everyone in need. Autism Res 2015, 8: 473–476. © 2015 International Society for Autism Research, Wiley Periodicals, Inc. |
format | Online Article Text |
id | pubmed-4901137 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2015 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-49011372016-06-10 Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide Durkin, Maureen S. Elsabbagh, Mayada Barbaro, Josephine Gladstone, Melissa Happe, Francesca Hoekstra, Rosa A. Lee, Li‐Ching Rattazzi, Alexia Stapel‐Wax, Jennifer Stone, Wendy L. Tager‐Flusberg, Helen Thurm, Audrey Tomlinson, Mark Shih, Andy Autism Res Commentary Most research into the epidemiology, etiology, clinical manifestations, diagnosis and treatment of autism is based on studies in high income countries. Moreover, within high income countries, individuals of high socioeconomic status are disproportionately represented among participants in autism research. Corresponding disparities in access to autism screening, diagnosis, and treatment exist globally. One of the barriers perpetuating this imbalance is the high cost of proprietary tools for diagnosing autism and for delivering evidence‐based therapies. Another barrier is the high cost of training of professionals and para‐professionals to use the tools. Open‐source and open access models provide a way to facilitate global collaboration and training. Using these models and technologies, the autism scientific community and clinicians worldwide should be able to work more effectively and efficiently than they have to date to address the global imbalance in autism knowledge and at the same time advance our understanding of autism and our ability to deliver cost‐effective services to everyone in need. Autism Res 2015, 8: 473–476. © 2015 International Society for Autism Research, Wiley Periodicals, Inc. John Wiley and Sons Inc. 2015-10 2015-10-06 /pmc/articles/PMC4901137/ /pubmed/26437907 http://dx.doi.org/10.1002/aur.1575 Text en © 2015 The Authors Autism Research published by Wiley Periodicals, Inc. on behalf of International Society for Autism Research This is an open access article under the terms of the Creative Commons Attribution (http://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Commentary Durkin, Maureen S. Elsabbagh, Mayada Barbaro, Josephine Gladstone, Melissa Happe, Francesca Hoekstra, Rosa A. Lee, Li‐Ching Rattazzi, Alexia Stapel‐Wax, Jennifer Stone, Wendy L. Tager‐Flusberg, Helen Thurm, Audrey Tomlinson, Mark Shih, Andy Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide |
title | Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide |
title_full | Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide |
title_fullStr | Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide |
title_full_unstemmed | Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide |
title_short | Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide |
title_sort | autism screening and diagnosis in low resource settings: challenges and opportunities to enhance research and services worldwide |
topic | Commentary |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4901137/ https://www.ncbi.nlm.nih.gov/pubmed/26437907 http://dx.doi.org/10.1002/aur.1575 |
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