Cargando…

Development of the Lupus Interactive Navigator as an Empowering Web-Based eHealth Tool to Facilitate Lupus Management: Users Perspectives on Usability and Acceptability

BACKGROUND: Systemic Lupus Erythematosus (SLE) is a serious, complex, and chronic illness. Similar to most other chronic illness states, there is great interest in helping persons with SLE engage in their disease management. OBJECTIVE: The objectives of this study were to (1) develop the Lupus Inter...

Descripción completa

Detalles Bibliográficos
Autores principales:	Neville, Carolyn, Da Costa, Deborah, Rochon, Murray, Peschken, Christine A, Pineau, Christian A, Bernatsky, Sasha, Keeling, Stephanie, Avina-Zubieta, Antonio, Lye, Elizabeth, Eng, Davy, Fortin, Paul R
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	JMIR Publications Inc. 2016
Materias:	Original Paper
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4906236/ https://www.ncbi.nlm.nih.gov/pubmed/27240666 http://dx.doi.org/10.2196/resprot.4219

Ejemplares similares

Toward the Development of a Lupus Interactive Navigator to Facilitate Patients and Their Health Care Providers in the Management of Lupus: Results of Web-Based Surveys
por: Neville, Carolyn, et al.
Publicado: (2014)

Predictors of Unsuccessful Hydroxychloroquine Tapering and Discontinuation: Can We Personalize Decision‐Making in Systemic Lupus Erythematosus Treatment?
por: Almeida‐Brasil, Celline C., et al.
Publicado: (2022)

Approaches for estimating minimal clinically important differences in systemic lupus erythematosus
por: Rai, Sharan K, et al.
Publicado: (2015)

Associations between Ambient Fine Particulate Levels and Disease Activity in Patients with Systemic Lupus Erythematosus (SLE)
por: Bernatsky, Sasha, et al.
Publicado: (2011)

Treatment patterns and control of hypertension in systemic lupus erythematosus (SLE): a cross-sectional study
por: Liu, Jia Li, et al.
Publicado: (2021)

Serologic phenotypes distinguish systemic lupus erythematosus patients developing interstitial lung disease and/or myositis
por: Cotton, Thaisa, et al.
Publicado: (2022)

Major congenital anomalies in children born to women with systemic lupus erythematosus
por: Vinet, E, et al.
Publicado: (2012)

B-cell receptor signaling studies in patients with lupus: preliminary results
por: Faludi, M, et al.
Publicado: (2012)

Marital status and age of systemic lupus erythematous diagnosis: the potential for differences related to sex and gender
por: Brailovski, Eugene, et al.
Publicado: (2019)

Nonlymphoma hematological malignancies in systemic lupus erythematosus
por: Lu, M, et al.
Publicado: (2012)

Hospitalizations in patients with systemic lupus erythematosus: updated analyses from 2006 to 2011
por: Chan, K, et al.
Publicado: (2012)

Elevated risk of chronic obstructive pulmonary disease in systemic lupus erythematosus: a population-based study
por: Avina-Zubieta, Antonio, et al.
Publicado: (2014)

Systematic Review and Meta-Analysis of Validation Studies on a Diabetes Case Definition from Health Administrative Records
por: Leong, Aaron, et al.
Publicado: (2013)

Conceptualizing Usability for the eHealth Context: Content Analysis of Usability Problems of eHealth Applications
por: Broekhuis, Marijke, et al.
Publicado: (2021)

A nucleolytic lupus autoantibody is toxic to BRCA2-deficient cancer cells
por: Noble, Philip W., et al.
Publicado: (2014)

High mortality in North American Natives with systemic lupus erythematosus
por: Peschken, Christine A, et al.
Publicado: (2014)

Dialogue: what can we learn about the relationship between systemic lupus erythematosus and haematological malignancies from linking disease registries?
por: Ramsey-Goldman, Rosalind, et al.
Publicado: (2014)

Risk of pulmonary embolism and deep vein thrombosis in systemic lupus erythematosus: a population-based cohort study
por: Aviña-Zubieta, JA, et al.
Publicado: (2012)

Improving usability benchmarking for the eHealth domain: The development of the eHealth UsaBility Benchmarking instrument (HUBBI)
por: Broekhuis, Marijke, et al.
Publicado: (2022)

Lymphoma risk in systemic lupus: effects of treatment versus disease activity
por: Clarke, AE, et al.
Publicado: (2012)

A highlight from the LUPUS 2014 meeting: eight great ideas
por: Buyon, Jill P, et al.
Publicado: (2015)

Reduced proportions of natural killer T cells are present in the relatives of lupus patients and are associated with autoimmunity
por: Wither, Joan, et al.
Publicado: (2008)

Web-based eHealth Clinical Decision Support System as a tool for the treat-to-target management of patients with systemic lupus erythematosus: development and initial usability evaluation
por: Parra Sanchez, Agner Russo, et al.
Publicado: (2023)

Cardiovascular events prior to or early after diagnosis of systemic lupus erythematosus in the systemic lupus international collaborating clinics cohort
por: Urowitz, M B, et al.
Publicado: (2016)

Platelet-derived microparticles serve as an important source of autoantigens and discriminate between levels of disease activity in systemic lupus erythematosus
por: Boilard, Eric, et al.
Publicado: (2014)

The Care-coordination Approach to Learning Lupus Self-Management: a patient navigator intervention for systemic lupus inpatients
por: White, Ashley A, et al.
Publicado: (2021)

Evaluation of the Compliance, Acceptance, and Usability of a Web-Based eHealth Intervention for Parents of Children With Infantile Hemangiomas: Usability Study
por: de Graaf, Marlies, et al.
Publicado: (2013)

Improving transition readiness and quality of life (QOL) with a pediatric lupus health passport
por: Von Scheven, Emily, et al.
Publicado: (2012)

Factors associated with damage accrual in patients with systemic lupus erythematosus: results from the Systemic Lupus International Collaborating Clinics (SLICC) Inception Cohort
por: Bruce, Ian N, et al.
Publicado: (2015)

EHealth to empower patients with musculoskeletal pain in rural Australia (EMPoweR) a randomised clinical trial: study protocol
por: Mesa-Castrillon, Carlos I., et al.
Publicado: (2021)

Development, usability and acceptability of an integrated eHealth system for spondyloarthritis in the Netherlands (SpA-Net)
por: Webers, Casper, et al.
Publicado: (2019)

Cancer risk in childhood-onset systemic lupus
por: Bernatsky, Sasha, et al.
Publicado: (2013)

Lung cancer in systemic lupus erythematosus
por: Kale, M, et al.
Publicado: (2012)

Study of Flare Assessment in Systemic Lupus Erythematosus Based on Paper Patients
por: Isenberg, D., et al.
Publicado: (2017)

Standardised incidence ratios (SIRs) for cancer after renal transplant in systemic lupus erythematosus (SLE) and non-SLE recipients
por: Ramsey-Goldman, Rosalind, et al.
Publicado: (2016)

Retinal toxicity in a multinational inception cohort of patients with systemic lupus on hydroxychloroquine
por: Almeida-Brasil, Celline C, et al.
Publicado: (2022)

Breast, ovarian, and endometrial malignancies in systemic lupus erythematosus: a meta-analysis
por: Bernatsky, S, et al.
Publicado: (2011)

Psychosis in Systemic Lupus Erythematosus: Results From an International Inception Cohort Study
por: Hanly, John G., et al.
Publicado: (2019)

eHealth in Geriatric Rehabilitation: Systematic Review of Effectiveness, Feasibility, and Usability
por: Kraaijkamp, Jules J M, et al.
Publicado: (2021)

The 1000 Canadian faces of systemic lupus erythematosus: effect of ethnicity on baseline pediatric data
por: Levy, Deborah M, et al.
Publicado: (2012)

Cannot write session to /tmp/vufind_sessions/sess_pgv3ev3vl8lea4698sepho0udr