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Health related quality of life of children with calcaneal apophysitis: child & parent perceptions

BACKGROUND: Children with a clinical diagnosis of calcaneal apophysitis reportedly experience impaired physical ability. Patient reported outcome assessments measure the level of conditional specific interference in everyday life. The aim of this study was to assess and compare the child and parent...

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Autores principales: James, Alicia M., Williams, Cylie M., Haines, Terry P.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4921004/
https://www.ncbi.nlm.nih.gov/pubmed/27342767
http://dx.doi.org/10.1186/s12955-016-0497-4
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author James, Alicia M.
Williams, Cylie M.
Haines, Terry P.
author_facet James, Alicia M.
Williams, Cylie M.
Haines, Terry P.
author_sort James, Alicia M.
collection PubMed
description BACKGROUND: Children with a clinical diagnosis of calcaneal apophysitis reportedly experience impaired physical ability. Patient reported outcome assessments measure the level of conditional specific interference in everyday life. The aim of this study was to assess and compare the child and parent perceptions of health related quality of life (QOL) associated with calcaneal apophysitis. METHODS: This is a longitudinal repeated measure study nested within a randomized comparative effectiveness trial. Children who had symptoms of calcaneal apophysitis were recruited from local advertising and from the caseload of podiatrists within the health setting (Australia). The Oxford Ankle Foot Questionnaire for Children (OxAFQ-C) was completed at baseline, 1, 2, 6 and 12 month time points by both child and parent. RESULTS: A total of 133 children were recruited and 124 participated in the study with 101 completing the OxAFQ-C at all five time points. The inter-rater reliability between the child and parent for the physical domain ranged between poor (0.06) to good (0.77) agreement, and the footwear domain ranged between poor (0.09) to good (0.66) across the time points. Both the school and emotional domains had moderate (0.46) to good (0.77) agreement. CONCLUSION: Children with calcaneal apophysitis have differing perceptions of health related QOL impact compared to their parents. Parents initially reported greater impact than their child however there was convergence of agreement over the follow-up period. These findings suggest understanding the impact from both child and parent perspective is imperative during treatment. TRIAL REGISTRATION: Trial Number: ACTRN12609000696291.
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spelling pubmed-49210042016-06-26 Health related quality of life of children with calcaneal apophysitis: child & parent perceptions James, Alicia M. Williams, Cylie M. Haines, Terry P. Health Qual Life Outcomes Research BACKGROUND: Children with a clinical diagnosis of calcaneal apophysitis reportedly experience impaired physical ability. Patient reported outcome assessments measure the level of conditional specific interference in everyday life. The aim of this study was to assess and compare the child and parent perceptions of health related quality of life (QOL) associated with calcaneal apophysitis. METHODS: This is a longitudinal repeated measure study nested within a randomized comparative effectiveness trial. Children who had symptoms of calcaneal apophysitis were recruited from local advertising and from the caseload of podiatrists within the health setting (Australia). The Oxford Ankle Foot Questionnaire for Children (OxAFQ-C) was completed at baseline, 1, 2, 6 and 12 month time points by both child and parent. RESULTS: A total of 133 children were recruited and 124 participated in the study with 101 completing the OxAFQ-C at all five time points. The inter-rater reliability between the child and parent for the physical domain ranged between poor (0.06) to good (0.77) agreement, and the footwear domain ranged between poor (0.09) to good (0.66) across the time points. Both the school and emotional domains had moderate (0.46) to good (0.77) agreement. CONCLUSION: Children with calcaneal apophysitis have differing perceptions of health related QOL impact compared to their parents. Parents initially reported greater impact than their child however there was convergence of agreement over the follow-up period. These findings suggest understanding the impact from both child and parent perspective is imperative during treatment. TRIAL REGISTRATION: Trial Number: ACTRN12609000696291. BioMed Central 2016-06-24 /pmc/articles/PMC4921004/ /pubmed/27342767 http://dx.doi.org/10.1186/s12955-016-0497-4 Text en © The Author(s). 2016 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research
James, Alicia M.
Williams, Cylie M.
Haines, Terry P.
Health related quality of life of children with calcaneal apophysitis: child & parent perceptions
title Health related quality of life of children with calcaneal apophysitis: child & parent perceptions
title_full Health related quality of life of children with calcaneal apophysitis: child & parent perceptions
title_fullStr Health related quality of life of children with calcaneal apophysitis: child & parent perceptions
title_full_unstemmed Health related quality of life of children with calcaneal apophysitis: child & parent perceptions
title_short Health related quality of life of children with calcaneal apophysitis: child & parent perceptions
title_sort health related quality of life of children with calcaneal apophysitis: child & parent perceptions
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4921004/
https://www.ncbi.nlm.nih.gov/pubmed/27342767
http://dx.doi.org/10.1186/s12955-016-0497-4
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