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Withholding treatment and intellectual disability: Second survey on end-of-life decisions in Switzerland
BACKGROUND: As people live longer, they are more likely to die over a prolonged period from incurable, chronic illnesses that occur more frequently in old age. Therefore, people will experience an increase in end-of-life discussions and decisions. AIM: The aim of this study was to explore the preval...
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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SAGE Publications
2016
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Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4926284/ https://www.ncbi.nlm.nih.gov/pubmed/27408720 http://dx.doi.org/10.1177/2050312116652637 |
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author | Wicki, Monika T |
author_facet | Wicki, Monika T |
author_sort | Wicki, Monika T |
collection | PubMed |
description | BACKGROUND: As people live longer, they are more likely to die over a prolonged period from incurable, chronic illnesses that occur more frequently in old age. Therefore, people will experience an increase in end-of-life discussions and decisions. AIM: The aim of this study was to explore the prevalence and nature of end-of-life decisions for people with disabilities in Swiss residential homes. DESIGN: A cross-sectional survey in the three biggest German-speaking regions in Switzerland (N = 209) was conducted. SETTING: All of the residential homes for adults with disabilities (N = 209) were invited to participate in a cross-sectional survey. The response quote was 76.7%. Directors provided information on 82 deaths. Chi-square and t-tests were used to study differences in prevalence and nature of end-of-life decisions between people with intellectual disability (ID) and people with other disabilities. RESULTS: An end-of-life decision was taken in 53.7% of the cases (n = 44). For people with ID, the decision to withhold treatment had been taken more often (28.9%, 13 cases) than for people with other disabilities (8.1%, 3 cases) (χ(2) (1, N = 82) = 5.58, p = 0.017). CONCLUSION: The study provides insight in end-of-life decision-making for people with disabilities in Switzerland. The results have implications on surrogate decision-making for people with ID living in residential homes. As the study partly confirms the results of previous studies, further studies will be necessary. |
format | Online Article Text |
id | pubmed-4926284 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2016 |
publisher | SAGE Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-49262842016-07-12 Withholding treatment and intellectual disability: Second survey on end-of-life decisions in Switzerland Wicki, Monika T SAGE Open Med Original Article BACKGROUND: As people live longer, they are more likely to die over a prolonged period from incurable, chronic illnesses that occur more frequently in old age. Therefore, people will experience an increase in end-of-life discussions and decisions. AIM: The aim of this study was to explore the prevalence and nature of end-of-life decisions for people with disabilities in Swiss residential homes. DESIGN: A cross-sectional survey in the three biggest German-speaking regions in Switzerland (N = 209) was conducted. SETTING: All of the residential homes for adults with disabilities (N = 209) were invited to participate in a cross-sectional survey. The response quote was 76.7%. Directors provided information on 82 deaths. Chi-square and t-tests were used to study differences in prevalence and nature of end-of-life decisions between people with intellectual disability (ID) and people with other disabilities. RESULTS: An end-of-life decision was taken in 53.7% of the cases (n = 44). For people with ID, the decision to withhold treatment had been taken more often (28.9%, 13 cases) than for people with other disabilities (8.1%, 3 cases) (χ(2) (1, N = 82) = 5.58, p = 0.017). CONCLUSION: The study provides insight in end-of-life decision-making for people with disabilities in Switzerland. The results have implications on surrogate decision-making for people with ID living in residential homes. As the study partly confirms the results of previous studies, further studies will be necessary. SAGE Publications 2016-06-06 /pmc/articles/PMC4926284/ /pubmed/27408720 http://dx.doi.org/10.1177/2050312116652637 Text en © The Author(s) 2016 http://creativecommons.org/licenses/by-nc/3.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 3.0 License (http://www.creativecommons.org/licenses/by-nc/3.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page(https://us.sagepub.com/en-us/nam/open-access-at-sage). |
spellingShingle | Original Article Wicki, Monika T Withholding treatment and intellectual disability: Second survey on end-of-life decisions in Switzerland |
title | Withholding treatment and intellectual disability: Second survey on end-of-life decisions in Switzerland |
title_full | Withholding treatment and intellectual disability: Second survey on end-of-life decisions in Switzerland |
title_fullStr | Withholding treatment and intellectual disability: Second survey on end-of-life decisions in Switzerland |
title_full_unstemmed | Withholding treatment and intellectual disability: Second survey on end-of-life decisions in Switzerland |
title_short | Withholding treatment and intellectual disability: Second survey on end-of-life decisions in Switzerland |
title_sort | withholding treatment and intellectual disability: second survey on end-of-life decisions in switzerland |
topic | Original Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4926284/ https://www.ncbi.nlm.nih.gov/pubmed/27408720 http://dx.doi.org/10.1177/2050312116652637 |
work_keys_str_mv | AT wickimonikat withholdingtreatmentandintellectualdisabilitysecondsurveyonendoflifedecisionsinswitzerland |