Cargando…
Implementation of Electronic Consent at a Biobank: An Opportunity for Precision Medicine Research
The purpose of this study is to characterize the potential benefits and challenges of electronic informed consent (eIC) as a strategy for rapidly expanding the reach of large biobanks while reducing costs and potentially enhancing participant engagement. The Partners HealthCare Biobank (Partners Bio...
Autores principales: | Boutin, Natalie T., Mathieu, Kathleen, Hoffnagle, Alison G., Allen, Nicole L., Castro, Victor M., Morash, Megan, O’Rourke, P. Pearl, Hohmann, Elizabeth L., Herring, Neil, Bry, Lynn, Slaugenhaupt, Susan A., Karlson, Elizabeth W., Weiss, Scott T., Smoller, Jordan W. |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2016
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4932464/ https://www.ncbi.nlm.nih.gov/pubmed/27294961 http://dx.doi.org/10.3390/jpm6020017 |
Ejemplares similares
-
Building the Partners HealthCare Biobank at Partners Personalized Medicine: Informed Consent, Return of Research Results, Recruitment Lessons and Operational Considerations
por: Karlson, Elizabeth W., et al.
Publicado: (2016) -
The Evolution of a Large Biobank at Mass General Brigham
por: Boutin, Natalie T., et al.
Publicado: (2022) -
Consent procedures in pediatric biobanks
por: Giesbertz, Noor AA, et al.
Publicado: (2015) -
Informed consent in the era of biobanks
por: Brothers, Kyle B
Publicado: (2013) -
Returning actionable genomic results in a research biobank: Analytic validity, clinical implementation, and resource utilization
por: Blout Zawatsky, Carrie L., et al.
Publicado: (2021)