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Challenges and opportunities for ELSI early career researchers

BACKGROUND: Over the past 25 years, there has been growing recognition of the importance of studying the Ethical, Legal and Social Implications (ELSI) of genetic and genomic research. A large investment into ELSI research from the National Institutes of Health (NIH) Human Genomic Project budget in 1...

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Autores principales: Bell, Jessica, Ancillotti, Mirko, Coathup, Victoria, Coy, Sarah, Rigter, Tessel, Tatum, Travis, Grewal, Jasjote, Akcesme, Faruk Berat, Brkić, Jovana, Causevic-Ramosevac, Anida, Milovanovic, Goran, Nobile, Marianna, Pavlidis, Cristiana, Finlay, Teresa, Kaye, Jane
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4939044/
https://www.ncbi.nlm.nih.gov/pubmed/27390930
http://dx.doi.org/10.1186/s12910-016-0121-5
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author Bell, Jessica
Ancillotti, Mirko
Coathup, Victoria
Coy, Sarah
Rigter, Tessel
Tatum, Travis
Grewal, Jasjote
Akcesme, Faruk Berat
Brkić, Jovana
Causevic-Ramosevac, Anida
Milovanovic, Goran
Nobile, Marianna
Pavlidis, Cristiana
Finlay, Teresa
Kaye, Jane
author_facet Bell, Jessica
Ancillotti, Mirko
Coathup, Victoria
Coy, Sarah
Rigter, Tessel
Tatum, Travis
Grewal, Jasjote
Akcesme, Faruk Berat
Brkić, Jovana
Causevic-Ramosevac, Anida
Milovanovic, Goran
Nobile, Marianna
Pavlidis, Cristiana
Finlay, Teresa
Kaye, Jane
author_sort Bell, Jessica
collection PubMed
description BACKGROUND: Over the past 25 years, there has been growing recognition of the importance of studying the Ethical, Legal and Social Implications (ELSI) of genetic and genomic research. A large investment into ELSI research from the National Institutes of Health (NIH) Human Genomic Project budget in 1990 stimulated the growth of this emerging field; ELSI research has continued to develop and is starting to emerge as a field in its own right. The evolving subject matter of ELSI research continues to raise new research questions as well as prompt re-evaluation of earlier work and a growing number of scholars working in this area now identify themselves as ELSI scholars rather than with a particular discipline. MAIN TEXT: Due to the international and interdisciplinary nature of ELSI research, scholars can often find themselves isolated from disciplinary or regionally situated support structures. We conducted a workshop with Early Career Researchers (ECRs) in Oxford, UK, and this paper discusses some of the particular challenges that were highlighted. While ELSI ECRs may face many of the universal challenges faced by ECRs, we argue that a number of challenges are either unique or exacerbated in the case of ELSI ECRs and discuss some of the reasons as to why this may be the case. We identify some of the most pressing issues for ELSI ECRs as: interdisciplinary angst and expertise, isolation from traditional support structures, limited resources and funding opportunities, and uncertainty regarding how research contributions will be measured. We discuss the potential opportunity to use web 2.0 technologies to transform academic support structures and address some of the challenges faced by ELSI ECRs, by helping to facilitate mentoring and support, access to resources and new accreditation metrics. CONCLUSION: As our field develops it is crucial for the ELSI community to continue looking forward to identify how emerging digital solutions can be used to facilitate the international and interdisciplinary research we perform, and to offer support for those embarking on, progressing through, and transitioning into an ELSI research career.
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spelling pubmed-49390442016-07-10 Challenges and opportunities for ELSI early career researchers Bell, Jessica Ancillotti, Mirko Coathup, Victoria Coy, Sarah Rigter, Tessel Tatum, Travis Grewal, Jasjote Akcesme, Faruk Berat Brkić, Jovana Causevic-Ramosevac, Anida Milovanovic, Goran Nobile, Marianna Pavlidis, Cristiana Finlay, Teresa Kaye, Jane BMC Med Ethics Debate BACKGROUND: Over the past 25 years, there has been growing recognition of the importance of studying the Ethical, Legal and Social Implications (ELSI) of genetic and genomic research. A large investment into ELSI research from the National Institutes of Health (NIH) Human Genomic Project budget in 1990 stimulated the growth of this emerging field; ELSI research has continued to develop and is starting to emerge as a field in its own right. The evolving subject matter of ELSI research continues to raise new research questions as well as prompt re-evaluation of earlier work and a growing number of scholars working in this area now identify themselves as ELSI scholars rather than with a particular discipline. MAIN TEXT: Due to the international and interdisciplinary nature of ELSI research, scholars can often find themselves isolated from disciplinary or regionally situated support structures. We conducted a workshop with Early Career Researchers (ECRs) in Oxford, UK, and this paper discusses some of the particular challenges that were highlighted. While ELSI ECRs may face many of the universal challenges faced by ECRs, we argue that a number of challenges are either unique or exacerbated in the case of ELSI ECRs and discuss some of the reasons as to why this may be the case. We identify some of the most pressing issues for ELSI ECRs as: interdisciplinary angst and expertise, isolation from traditional support structures, limited resources and funding opportunities, and uncertainty regarding how research contributions will be measured. We discuss the potential opportunity to use web 2.0 technologies to transform academic support structures and address some of the challenges faced by ELSI ECRs, by helping to facilitate mentoring and support, access to resources and new accreditation metrics. CONCLUSION: As our field develops it is crucial for the ELSI community to continue looking forward to identify how emerging digital solutions can be used to facilitate the international and interdisciplinary research we perform, and to offer support for those embarking on, progressing through, and transitioning into an ELSI research career. BioMed Central 2016-07-08 /pmc/articles/PMC4939044/ /pubmed/27390930 http://dx.doi.org/10.1186/s12910-016-0121-5 Text en © The Author(s). 2016 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Debate
Bell, Jessica
Ancillotti, Mirko
Coathup, Victoria
Coy, Sarah
Rigter, Tessel
Tatum, Travis
Grewal, Jasjote
Akcesme, Faruk Berat
Brkić, Jovana
Causevic-Ramosevac, Anida
Milovanovic, Goran
Nobile, Marianna
Pavlidis, Cristiana
Finlay, Teresa
Kaye, Jane
Challenges and opportunities for ELSI early career researchers
title Challenges and opportunities for ELSI early career researchers
title_full Challenges and opportunities for ELSI early career researchers
title_fullStr Challenges and opportunities for ELSI early career researchers
title_full_unstemmed Challenges and opportunities for ELSI early career researchers
title_short Challenges and opportunities for ELSI early career researchers
title_sort challenges and opportunities for elsi early career researchers
topic Debate
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4939044/
https://www.ncbi.nlm.nih.gov/pubmed/27390930
http://dx.doi.org/10.1186/s12910-016-0121-5
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