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Mucopolysaccharidosis I; Parental beliefs about the impact of disease on the quality of life of their children

BACKGROUND: Hematopoietic stem cell transplants, alongside enzyme replacement therapy and good multi-disciplinary care, have dramatically improved the life expectancy in children with Mucopolysaccharidosis (MPS) I, with better objective and functional outcomes. Despite these improvements, children w...

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Detalles Bibliográficos
Autores principales:	Soni-Jaiswal, A., Mercer, J., Jones, S. A., Bruce, I. A., Callery, P.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2016
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4942895/ https://www.ncbi.nlm.nih.gov/pubmed/27406185 http://dx.doi.org/10.1186/s13023-016-0478-z

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