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Communication of support and critique in Swedish virtual community threads about prenatal diagnoses of fetal anomalies

BACKGROUND: A prenatal diagnosis of a fetal anomaly involves acute grief and psychological distress. The Internet has the potential to provide virtual support following the diagnosis. The overall aim was to explore communication of support and critique in Swedish virtual community threads about pren...

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Autores principales: Carlsson, Tommy, Landqvist, Mats, Mattsson, Elisabet
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4966874/
https://www.ncbi.nlm.nih.gov/pubmed/27473303
http://dx.doi.org/10.1186/s12884-016-0989-6
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author Carlsson, Tommy
Landqvist, Mats
Mattsson, Elisabet
author_facet Carlsson, Tommy
Landqvist, Mats
Mattsson, Elisabet
author_sort Carlsson, Tommy
collection PubMed
description BACKGROUND: A prenatal diagnosis of a fetal anomaly involves acute grief and psychological distress. The Internet has the potential to provide virtual support following the diagnosis. The overall aim was to explore communication of support and critique in Swedish virtual community threads about prenatal diagnoses of fetal anomalies. METHODS: Systematic searches in Google resulted in 117 eligible threads. Fifteen of these were purposefully selected and subjected to deductive content analysis. RESULTS: The virtual support involved mainly emotional support (meaning units n = 1,992/3,688, 54 %) and was described as comforting and empowering. Posters with experience of a prenatal diagnosis appreciated the virtual support, including the opportunity to gain insight into other cases and to write about one’s own experience. Critique of the decision to continue or terminate the pregnancy occurred, primarily against termination of pregnancy. However, it was met with defense. CONCLUSIONS: Peer support, mainly emotional, is provided and highly appreciated in threads about prenatal diagnoses of a fetal anomaly. Critique of the decision to terminate the pregnancy occurs in virtual community threads about prenatal diagnoses, but the norm is to not question the decision. Future studies need to investigate if virtual peer support promotes psychosocial function following a prenatal diagnosis and what medium would be most suitable for these types of supportive structures.
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spelling pubmed-49668742016-07-30 Communication of support and critique in Swedish virtual community threads about prenatal diagnoses of fetal anomalies Carlsson, Tommy Landqvist, Mats Mattsson, Elisabet BMC Pregnancy Childbirth Research Article BACKGROUND: A prenatal diagnosis of a fetal anomaly involves acute grief and psychological distress. The Internet has the potential to provide virtual support following the diagnosis. The overall aim was to explore communication of support and critique in Swedish virtual community threads about prenatal diagnoses of fetal anomalies. METHODS: Systematic searches in Google resulted in 117 eligible threads. Fifteen of these were purposefully selected and subjected to deductive content analysis. RESULTS: The virtual support involved mainly emotional support (meaning units n = 1,992/3,688, 54 %) and was described as comforting and empowering. Posters with experience of a prenatal diagnosis appreciated the virtual support, including the opportunity to gain insight into other cases and to write about one’s own experience. Critique of the decision to continue or terminate the pregnancy occurred, primarily against termination of pregnancy. However, it was met with defense. CONCLUSIONS: Peer support, mainly emotional, is provided and highly appreciated in threads about prenatal diagnoses of a fetal anomaly. Critique of the decision to terminate the pregnancy occurs in virtual community threads about prenatal diagnoses, but the norm is to not question the decision. Future studies need to investigate if virtual peer support promotes psychosocial function following a prenatal diagnosis and what medium would be most suitable for these types of supportive structures. BioMed Central 2016-07-29 /pmc/articles/PMC4966874/ /pubmed/27473303 http://dx.doi.org/10.1186/s12884-016-0989-6 Text en © The Author(s). 2016 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research Article
Carlsson, Tommy
Landqvist, Mats
Mattsson, Elisabet
Communication of support and critique in Swedish virtual community threads about prenatal diagnoses of fetal anomalies
title Communication of support and critique in Swedish virtual community threads about prenatal diagnoses of fetal anomalies
title_full Communication of support and critique in Swedish virtual community threads about prenatal diagnoses of fetal anomalies
title_fullStr Communication of support and critique in Swedish virtual community threads about prenatal diagnoses of fetal anomalies
title_full_unstemmed Communication of support and critique in Swedish virtual community threads about prenatal diagnoses of fetal anomalies
title_short Communication of support and critique in Swedish virtual community threads about prenatal diagnoses of fetal anomalies
title_sort communication of support and critique in swedish virtual community threads about prenatal diagnoses of fetal anomalies
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4966874/
https://www.ncbi.nlm.nih.gov/pubmed/27473303
http://dx.doi.org/10.1186/s12884-016-0989-6
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