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The Lived Experience of Psoriasis Patients from Social Stigma and Rejection: A Qualitative Study

BACKGROUND: Psoriasis is a common, chronic skin disease that causes challenges such as stigma and labeling from both the community and individuals due to its effects on appearance. OBJECTIVES: The objective of this study was to describe and explain the social stigma and rejection experienced by pati...

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Autores principales: Ghorbanibirgani, Alireza, Fallahi-Khoshknab, Masoud, Zarea, Kourosh, Abedi, Heidarali
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Kowsar 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5026766/
https://www.ncbi.nlm.nih.gov/pubmed/27656290
http://dx.doi.org/10.5812/ircmj.27893
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author Ghorbanibirgani, Alireza
Fallahi-Khoshknab, Masoud
Zarea, Kourosh
Abedi, Heidarali
author_facet Ghorbanibirgani, Alireza
Fallahi-Khoshknab, Masoud
Zarea, Kourosh
Abedi, Heidarali
author_sort Ghorbanibirgani, Alireza
collection PubMed
description BACKGROUND: Psoriasis is a common, chronic skin disease that causes challenges such as stigma and labeling from both the community and individuals due to its effects on appearance. OBJECTIVES: The objective of this study was to describe and explain the social stigma and rejection experienced by patients with psoriasis. PATIENTS AND METHODS: The present research is a qualitative study with a hermeneutic phenomenological approach conducted among psoriasis patients referring to the dermatology clinic and ward of Imam Khomeini hospital in Ahvaz, Iran between June and December 2014. In this study, 15 patients with psoriasis were selected by purposeful sampling, and they were asked to express their experience of stigma and rejection. The data were collected through in-depth semi-structured interviews, and Diekelmann and colleagues’ method was used for data analysis. RESULTS: After analysis of interviews, four themes were extracted: lack of social support, unrealistic and inappropriate labeling, rejection and isolation, and feeling of absurdity and futility. These can be indicative of the patients’ experience from social stigma and rejection phenomena. CONCLUSIONS: Patients’ experiences of stigma and rejection phenomena indicated that all aspects of their lives are affected. Moreover, these findings highlight the significance of stigma and rejection concepts in providing better care to these patients.
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spelling pubmed-50267662016-09-21 The Lived Experience of Psoriasis Patients from Social Stigma and Rejection: A Qualitative Study Ghorbanibirgani, Alireza Fallahi-Khoshknab, Masoud Zarea, Kourosh Abedi, Heidarali Iran Red Crescent Med J Research Article BACKGROUND: Psoriasis is a common, chronic skin disease that causes challenges such as stigma and labeling from both the community and individuals due to its effects on appearance. OBJECTIVES: The objective of this study was to describe and explain the social stigma and rejection experienced by patients with psoriasis. PATIENTS AND METHODS: The present research is a qualitative study with a hermeneutic phenomenological approach conducted among psoriasis patients referring to the dermatology clinic and ward of Imam Khomeini hospital in Ahvaz, Iran between June and December 2014. In this study, 15 patients with psoriasis were selected by purposeful sampling, and they were asked to express their experience of stigma and rejection. The data were collected through in-depth semi-structured interviews, and Diekelmann and colleagues’ method was used for data analysis. RESULTS: After analysis of interviews, four themes were extracted: lack of social support, unrealistic and inappropriate labeling, rejection and isolation, and feeling of absurdity and futility. These can be indicative of the patients’ experience from social stigma and rejection phenomena. CONCLUSIONS: Patients’ experiences of stigma and rejection phenomena indicated that all aspects of their lives are affected. Moreover, these findings highlight the significance of stigma and rejection concepts in providing better care to these patients. Kowsar 2016-05-21 /pmc/articles/PMC5026766/ /pubmed/27656290 http://dx.doi.org/10.5812/ircmj.27893 Text en Copyright © 2016, Iranian Red Crescent Medical Journal http://creativecommons.org/licenses/by-nc/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International License (http://creativecommons.org/licenses/by-nc/4.0/) which permits copy and redistribute the material just in noncommercial usages, provided the original work is properly cited.
spellingShingle Research Article
Ghorbanibirgani, Alireza
Fallahi-Khoshknab, Masoud
Zarea, Kourosh
Abedi, Heidarali
The Lived Experience of Psoriasis Patients from Social Stigma and Rejection: A Qualitative Study
title The Lived Experience of Psoriasis Patients from Social Stigma and Rejection: A Qualitative Study
title_full The Lived Experience of Psoriasis Patients from Social Stigma and Rejection: A Qualitative Study
title_fullStr The Lived Experience of Psoriasis Patients from Social Stigma and Rejection: A Qualitative Study
title_full_unstemmed The Lived Experience of Psoriasis Patients from Social Stigma and Rejection: A Qualitative Study
title_short The Lived Experience of Psoriasis Patients from Social Stigma and Rejection: A Qualitative Study
title_sort lived experience of psoriasis patients from social stigma and rejection: a qualitative study
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5026766/
https://www.ncbi.nlm.nih.gov/pubmed/27656290
http://dx.doi.org/10.5812/ircmj.27893
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