Cargando…

Public preferences and the challenge to genetic research policy

Modern genetic research requires scientists to collect, store, and study DNA samples and health information from thousands of people. Longstanding policy allows researchers to use samples and information without a person's informed consent as long as the person's identity is protected. Und...

Descripción completa

Detalles Bibliográficos
Autor principal:	Dresser, Rebecca
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Oxford University Press 2014
Materias:	Original Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5033517/ https://www.ncbi.nlm.nih.gov/pubmed/27774155 http://dx.doi.org/10.1093/jlb/lst001

Ejemplares similares

Public Water Policy Knowledge and Policy Preferences in the American West
por: Wolters, Erika Allen, et al.
Publicado: (2022)

Public Preferences for Government Response Policies on Outbreak Control
por: Ozdemir, Semra, et al.
Publicado: (2021)

Public preferences for the return of research results in genetic research: A conjoint analysis
por: Bollinger, Juli, et al.
Publicado: (2014)

The public’s preferred level of involvement in local policy-making
por: Haesevoets, Tessa, et al.
Publicado: (2023)

Public preference on sharing health data to inform research, health policy and clinical practice in Australia: A stated preference experiment
por: Varhol, Richard J., et al.
Publicado: (2023)

Do health policy advisors know what the public wants? An empirical comparison of how health policy advisors assess public preferences regarding smoke-free air, and what the public actually prefers
por: Rosen, Laura J, et al.
Publicado: (2013)

Public Preferences for Policies to Promote COVID-19 Vaccination Uptake
por: Sookarodee, Pathum, et al.
Publicado: (2023)

Disseminating health research to public health policy-makers and practitioners: a survey of source, message content and delivery modality preferences
por: McCrabb, Sam, et al.
Publicado: (2023)

Research in mathematics and public policy
por: Lee, Mary, et al.
Publicado: (2020)

Ethical and public policy challenges for pharmacogenomics
por: Gershon, Elliot S., et al.
Publicado: (2014)

Grand Challenges in Public Health Policy
por: Weeramanthri, Tarun Stephen, et al.
Publicado: (2015)

Public Preferences for Social Distancing Policy Measures to Mitigate the Spread of COVID-19 in Missouri
por: Eshun-Wilson, Ingrid, et al.
Publicado: (2021)

Public preferences for policies promoting a healthy diet: a discrete choice experiment
por: Dieteren, C. M., et al.
Publicado: (2022)

Policy Preferences Regarding Health Data Sharing Among Patients With Cancer: Public Deliberations
por: Raj, Minakshi, et al.
Publicado: (2023)

Quantifying the publication preferences of leading research universities
por: Lancho-Barrantes, Barbara S., et al.
Publicado: (2021)

How, who, and when: preferences for delivery of genome sequencing results among women diagnosed with breast cancer at a young age
por: Kaphingst, Kimberly A., et al.
Publicado: (2016)

Policies that Challenge Food Sustainability and Public Health
por: Linnekin, Baylen J.
Publicado: (2016)

Getting Research to the Policy Table: A Qualitative Study With Public Health Researchers on Engaging With Policy Makers
por: Otten, Jennifer J., et al.
Publicado: (2015)

Public Preference for Electric Vehicle Incentive Policies in China: A Conjoint Analysis
por: Li, Wenbo, et al.
Publicado: (2020)

Environmental Efficacy, Climate Change Beliefs, Ideology, and Public Water Policy Preferences
por: Wolters, Erika Allen, et al.
Publicado: (2021)

Public health workforce: challenges and policy issues
por: Beaglehole, Robert, et al.
Publicado: (2003)

Using Societal Values to Inform Public Health Policy During the COVID-19 Pandemic: The Role of Health Preference Research
por: DiSantostefano, Rachael L., et al.
Publicado: (2021)

PUBLIC POLICY ISSUES OF SIGNIFICANCE IN SOCIAL RESEARCH, POLICY, AND PRACTICE
por: Harootyan, Robert
Publicado: (2019)

Measuring Public Preferences for Changes in the Health Insurance Benefit Package Policies in Iran: A Survey Approach
por: MOHAMADI, Efat, et al.
Publicado: (2020)

Four normative perspectives on public health policy-making and their preferences for bodies of evidence
por: Schoemaker, Casper G., et al.
Publicado: (2020)

Exploring Public Preferences, Priorities, and Policy Perspectives for Controlling Invasive Mosquito Species in Greece
por: Kolimenakis, Antonios, et al.
Publicado: (2019)

Public Policies and One Health in Brazil: The Challenge of the Disarticulation
por: Espeschit, Isis de Freitas, et al.
Publicado: (2021)

Challenges in implementation of public policies in aging and dementia in Peru
por: Diaz, Monica M., et al.
Publicado: (2023)

Methodological Priorities for Patient Preferences Research: Stakeholder Input to the PREFER Public–Private Project
por: Smith, Ian P., et al.
Publicado: (2021)

US Privacy Laws Go Against Public Preferences and Impede Public Health and Research: Survey Study
por: Schmit, Cason, et al.
Publicado: (2021)

Research participants’ experiences with return of genetic research results and preferences for web‐based alternatives
por: Gaieski, Jill B., et al.
Publicado: (2019)

Prioritising patients for bariatric surgery: building public preferences from a discrete choice experiment into public policy
por: Whitty, Jennifer A, et al.
Publicado: (2015)

Kratom policy: The challenge of balancing therapeutic potential with public safety
por: Prozialeck, Walter C., et al.
Publicado: (2019)

Patients’ and Publics’ Preferences for Data-Intensive Health Research Governance: Survey Study
por: Muller, Sam H A, et al.
Publicado: (2022)

Exploring Consumer Preferences for Cannabis Vaping Products to Support Public Health Policy: A Discrete Choice Experiment
por: Donnan, Jennifer R., et al.
Publicado: (2023)

Public Preferences for the Use of Taxation and Labelling Policy Measures to Combat Obesity in Young Children in Australia
por: Comans, Tracy, et al.
Publicado: (2017)

The Impact of Efficacy, Values, and Knowledge on Public Preferences Concerning Food–Water–Energy Policy Tradeoffs
por: Gardezi, Najam uz Zehra, et al.
Publicado: (2020)

Global Research on Coronaviruses: Metadata-Based Analysis for Public Health Policies
por: Warin, Thierry
Publicado: (2021)

Psychology research, public policy, and practice : toward a productive partnership /
Publicado: (1985)

Key opportunities and challenges for the use of big data in migration research and policy
por: Franklinos, Lydia H. V., et al.
Publicado: (2021)

Cannot write session to /tmp/vufind_sessions/sess_f1b6sa4j5nvkc6vi0ilv6ibkaj