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Trust, vulnerable populations, and genetic data sharing

Recent policies and proposed regulations, including the Notice of Proposed Rulemaking for the Common Rule and the 2014 NIH Genetic Data Sharing Policy, seek to improve research subject protections. Protections for subjects whose genetic data is shared are critical to reduce risks such as loss of con...

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Detalles Bibliográficos
Autores principales:	Arias, Jalayne J., Pham-Kanter, Genevieve, Gonzalez, Rosa, Campbell, Eric G.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Oxford University Press 2015
Materias:	Response
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5034389/ https://www.ncbi.nlm.nih.gov/pubmed/27774227 http://dx.doi.org/10.1093/jlb/lsv044

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