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CRISPR, a Crossroads in Genetic Intervention: Pitting the Right to Health against the Right to Disability

Reproductive genetic technologies (RGTs), including gene-editing technology, are being discovered and refined at an exponential pace. One gene-editing innovation that demands our swift attention is CRISPR/Cas9, a system of clustered regularly interspaced short palindromic repeats and a protein calle...

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Autor principal: Benston, Shawna
Formato: Online Artículo Texto
Lenguaje:English
Publicado: 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5038348/
https://www.ncbi.nlm.nih.gov/pubmed/27688903
http://dx.doi.org/10.3390/laws5010005
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author Benston, Shawna
author_facet Benston, Shawna
author_sort Benston, Shawna
collection PubMed
description Reproductive genetic technologies (RGTs), including gene-editing technology, are being discovered and refined at an exponential pace. One gene-editing innovation that demands our swift attention is CRISPR/Cas9, a system of clustered regularly interspaced short palindromic repeats and a protein called Cas9. As CRISPR and other RGTs continue being developed, we must remain vigilant concerning the potential implications of genetic-engineering technology on our interpersonal and legal relationships. In the face of increasingly numerous and refined RGTs, we must maintain the rights of everyone: potential parents, prospective children, and individuals (both living and prospective) with disabilities. For those who wish to become parents, how should procreation be regulated in light of developing RGTs, especially gene-editing technology? What duties do parents owe their children, and when does such a duty attach? What role should RGTs play in parents’ fulfillment of their duties to their children? This article will contextualize the right to health and what I will term the “right to disability” in the CRISPR/Cas9 landscape. The article will then explore these rights in reference to the “subjunctive-threshold” interpretation of harm. Finally, I will argue that RGTs must be thoughtfully regulated, with such regulations taking into account the opinions of geneticists, bioethicists, and lay people concerning both the right to health and the right to disability.
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spelling pubmed-50383482016-09-27 CRISPR, a Crossroads in Genetic Intervention: Pitting the Right to Health against the Right to Disability Benston, Shawna Laws Article Reproductive genetic technologies (RGTs), including gene-editing technology, are being discovered and refined at an exponential pace. One gene-editing innovation that demands our swift attention is CRISPR/Cas9, a system of clustered regularly interspaced short palindromic repeats and a protein called Cas9. As CRISPR and other RGTs continue being developed, we must remain vigilant concerning the potential implications of genetic-engineering technology on our interpersonal and legal relationships. In the face of increasingly numerous and refined RGTs, we must maintain the rights of everyone: potential parents, prospective children, and individuals (both living and prospective) with disabilities. For those who wish to become parents, how should procreation be regulated in light of developing RGTs, especially gene-editing technology? What duties do parents owe their children, and when does such a duty attach? What role should RGTs play in parents’ fulfillment of their duties to their children? This article will contextualize the right to health and what I will term the “right to disability” in the CRISPR/Cas9 landscape. The article will then explore these rights in reference to the “subjunctive-threshold” interpretation of harm. Finally, I will argue that RGTs must be thoughtfully regulated, with such regulations taking into account the opinions of geneticists, bioethicists, and lay people concerning both the right to health and the right to disability. 2016-02-18 2016-03 /pmc/articles/PMC5038348/ /pubmed/27688903 http://dx.doi.org/10.3390/laws5010005 Text en This article is an open access article distributed under the terms and conditions of the Creative Commons by Attribution (CC-BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Benston, Shawna
CRISPR, a Crossroads in Genetic Intervention: Pitting the Right to Health against the Right to Disability
title CRISPR, a Crossroads in Genetic Intervention: Pitting the Right to Health against the Right to Disability
title_full CRISPR, a Crossroads in Genetic Intervention: Pitting the Right to Health against the Right to Disability
title_fullStr CRISPR, a Crossroads in Genetic Intervention: Pitting the Right to Health against the Right to Disability
title_full_unstemmed CRISPR, a Crossroads in Genetic Intervention: Pitting the Right to Health against the Right to Disability
title_short CRISPR, a Crossroads in Genetic Intervention: Pitting the Right to Health against the Right to Disability
title_sort crispr, a crossroads in genetic intervention: pitting the right to health against the right to disability
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5038348/
https://www.ncbi.nlm.nih.gov/pubmed/27688903
http://dx.doi.org/10.3390/laws5010005
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