A scoping review of family experience and need during end of life care in intensive care

AIM: To scope systematically and collate qualitative studies on family experience and need during end of life care in intensive care, from the perspective of family members. DESIGN: Scoping review of qualitative research. METHODS: Standardized processes of study identification, data extraction and data synthesis were used. Multiple bibliographic databases were accessed during 2011 and updated in 2013. RESULTS: From an initial 876 references, 16 studies were identified for inclusion. These were predominantly single site, North American studies that explored issues relating to the temporal stages in the end of life trajectory and the requirement for information and emotional support at end of life. With a strong focus on family need and experience during the transition from active treatment to end of life care, more work is required to understand how doctors and nurses can support families from treatment withdrawal through to death.