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User involvement and experiential knowledge in interprofessional rehabilitation: a grounded theory study

BACKGROUND: User involvement is increasingly important in developing relevant health care services. The aim of this study was to contribute to a deeper understanding of user involvement and patients’ experiential knowledge as recognized and incorporated into clinical practice by rehabilitation profe...

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Autores principales: Slomic, Mirela, Christiansen, Bjørg, Soberg, Helene L., Sveen, Unni
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5051024/
https://www.ncbi.nlm.nih.gov/pubmed/27716269
http://dx.doi.org/10.1186/s12913-016-1808-5
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author Slomic, Mirela
Christiansen, Bjørg
Soberg, Helene L.
Sveen, Unni
author_facet Slomic, Mirela
Christiansen, Bjørg
Soberg, Helene L.
Sveen, Unni
author_sort Slomic, Mirela
collection PubMed
description BACKGROUND: User involvement is increasingly important in developing relevant health care services. The aim of this study was to contribute to a deeper understanding of user involvement and patients’ experiential knowledge as recognized and incorporated into clinical practice by rehabilitation professionals. METHODS: A qualitative design using a grounded theory approach was applied. Data were collected by observations of the interprofessional meetings at two rehabilitation units treating patients with traumatic brain injury and multiple trauma and by individual semi-structured interviews with rehabilitation professionals. RESULTS: The professionals recognized and incorporated user involvement into clinical practice as formal or authentic. Formal user involvement was sometimes considered pro forma. Incorporating patient’ experiential knowledge was considered a part of authentic user involvement. Possible gaps between the patients’ experiential knowledge and professional expertise were recognized. Challenges included dealing with ‘artifacts’, sources of information external to the patients’ own experiences, and addressing the patients’ possibly reduced insight due to trauma. CONCLUSION: Patients’ experiential knowledge was recognized as an essential component of the professionals’ knowledge base. The professionals considered user involvement and patients’ experiential knowledge as part of their clinical practice. Implementation of user involvement and contribution of patients’ experiential knowledge could be improved by understanding the issues raised in practice, such as possible negative consequences of user involvement in form of burdening or disempowering the patients. A better understanding of the characteristics and measures of user involvement is necessary in order to be able to offer its full benefits for both the patients and the professionals. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (doi:10.1186/s12913-016-1808-5) contains supplementary material, which is available to authorized users.
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spelling pubmed-50510242016-10-05 User involvement and experiential knowledge in interprofessional rehabilitation: a grounded theory study Slomic, Mirela Christiansen, Bjørg Soberg, Helene L. Sveen, Unni BMC Health Serv Res Research Article BACKGROUND: User involvement is increasingly important in developing relevant health care services. The aim of this study was to contribute to a deeper understanding of user involvement and patients’ experiential knowledge as recognized and incorporated into clinical practice by rehabilitation professionals. METHODS: A qualitative design using a grounded theory approach was applied. Data were collected by observations of the interprofessional meetings at two rehabilitation units treating patients with traumatic brain injury and multiple trauma and by individual semi-structured interviews with rehabilitation professionals. RESULTS: The professionals recognized and incorporated user involvement into clinical practice as formal or authentic. Formal user involvement was sometimes considered pro forma. Incorporating patient’ experiential knowledge was considered a part of authentic user involvement. Possible gaps between the patients’ experiential knowledge and professional expertise were recognized. Challenges included dealing with ‘artifacts’, sources of information external to the patients’ own experiences, and addressing the patients’ possibly reduced insight due to trauma. CONCLUSION: Patients’ experiential knowledge was recognized as an essential component of the professionals’ knowledge base. The professionals considered user involvement and patients’ experiential knowledge as part of their clinical practice. Implementation of user involvement and contribution of patients’ experiential knowledge could be improved by understanding the issues raised in practice, such as possible negative consequences of user involvement in form of burdening or disempowering the patients. A better understanding of the characteristics and measures of user involvement is necessary in order to be able to offer its full benefits for both the patients and the professionals. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (doi:10.1186/s12913-016-1808-5) contains supplementary material, which is available to authorized users. BioMed Central 2016-10-04 /pmc/articles/PMC5051024/ /pubmed/27716269 http://dx.doi.org/10.1186/s12913-016-1808-5 Text en © The Author(s). 2016 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research Article
Slomic, Mirela
Christiansen, Bjørg
Soberg, Helene L.
Sveen, Unni
User involvement and experiential knowledge in interprofessional rehabilitation: a grounded theory study
title User involvement and experiential knowledge in interprofessional rehabilitation: a grounded theory study
title_full User involvement and experiential knowledge in interprofessional rehabilitation: a grounded theory study
title_fullStr User involvement and experiential knowledge in interprofessional rehabilitation: a grounded theory study
title_full_unstemmed User involvement and experiential knowledge in interprofessional rehabilitation: a grounded theory study
title_short User involvement and experiential knowledge in interprofessional rehabilitation: a grounded theory study
title_sort user involvement and experiential knowledge in interprofessional rehabilitation: a grounded theory study
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5051024/
https://www.ncbi.nlm.nih.gov/pubmed/27716269
http://dx.doi.org/10.1186/s12913-016-1808-5
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