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The experiences of patients with Duchenne muscular dystrophy in facing and learning about their clinical conditions

Patients experience extreme difficulty when facing an intractable genetic disease. Herein, we examine the experiences of patients with Duchenne muscular dystrophy in facing and learning about their disease. A total of seven patients with Duchenne muscular dystrophy (age range: 20–48) participated. W...

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Detalles Bibliográficos
Autores principales: Fujino, Haruo, Iwata, Yuko, Saito, Toshio, Matsumura, Tsuyoshi, Fujimura, Harutoshi, Imura, Osamu
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Co-Action Publishing 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5054085/
https://www.ncbi.nlm.nih.gov/pubmed/27712620
http://dx.doi.org/10.3402/qhw.v11.32045