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The experiences of patients with Duchenne muscular dystrophy in facing and learning about their clinical conditions
Patients experience extreme difficulty when facing an intractable genetic disease. Herein, we examine the experiences of patients with Duchenne muscular dystrophy in facing and learning about their disease. A total of seven patients with Duchenne muscular dystrophy (age range: 20–48) participated. W...
Autores principales: | Fujino, Haruo, Iwata, Yuko, Saito, Toshio, Matsumura, Tsuyoshi, Fujimura, Harutoshi, Imura, Osamu |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Co-Action Publishing
2016
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5054085/ https://www.ncbi.nlm.nih.gov/pubmed/27712620 http://dx.doi.org/10.3402/qhw.v11.32045 |
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