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The Adoption of Cloud Computing in the Field of Genomics Research: The Influence of Ethical and Legal Issues
This study aims to understand the influence of the ethical and legal issues on cloud computing adoption in the field of genomics research. To do so, we adapted Diffusion of Innovation (DoI) theory to enable understanding of how key stakeholders manage the various ethical and legal issues they encoun...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Public Library of Science
2016
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5068798/ https://www.ncbi.nlm.nih.gov/pubmed/27755563 http://dx.doi.org/10.1371/journal.pone.0164347 |
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author | Charlebois, Kathleen Palmour, Nicole Knoppers, Bartha Maria |
author_facet | Charlebois, Kathleen Palmour, Nicole Knoppers, Bartha Maria |
author_sort | Charlebois, Kathleen |
collection | PubMed |
description | This study aims to understand the influence of the ethical and legal issues on cloud computing adoption in the field of genomics research. To do so, we adapted Diffusion of Innovation (DoI) theory to enable understanding of how key stakeholders manage the various ethical and legal issues they encounter when adopting cloud computing. Twenty semi-structured interviews were conducted with genomics researchers, patient advocates and cloud service providers. Thematic analysis generated five major themes: 1) Getting comfortable with cloud computing; 2) Weighing the advantages and the risks of cloud computing; 3) Reconciling cloud computing with data privacy; 4) Maintaining trust and 5) Anticipating the cloud by creating the conditions for cloud adoption. Our analysis highlights the tendency among genomics researchers to gradually adopt cloud technology. Efforts made by cloud service providers to promote cloud computing adoption are confronted by researchers’ perpetual cost and security concerns, along with a lack of familiarity with the technology. Further underlying those fears are researchers’ legal responsibility with respect to the data that is stored on the cloud. Alternative consent mechanisms aimed at increasing patients’ control over the use of their data also provide a means to circumvent various institutional and jurisdictional hurdles that restrict access by creating siloed databases. However, the risk of creating new, cloud-based silos may run counter to the goal in genomics research to increase data sharing on a global scale. |
format | Online Article Text |
id | pubmed-5068798 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2016 |
publisher | Public Library of Science |
record_format | MEDLINE/PubMed |
spelling | pubmed-50687982016-10-27 The Adoption of Cloud Computing in the Field of Genomics Research: The Influence of Ethical and Legal Issues Charlebois, Kathleen Palmour, Nicole Knoppers, Bartha Maria PLoS One Research Article This study aims to understand the influence of the ethical and legal issues on cloud computing adoption in the field of genomics research. To do so, we adapted Diffusion of Innovation (DoI) theory to enable understanding of how key stakeholders manage the various ethical and legal issues they encounter when adopting cloud computing. Twenty semi-structured interviews were conducted with genomics researchers, patient advocates and cloud service providers. Thematic analysis generated five major themes: 1) Getting comfortable with cloud computing; 2) Weighing the advantages and the risks of cloud computing; 3) Reconciling cloud computing with data privacy; 4) Maintaining trust and 5) Anticipating the cloud by creating the conditions for cloud adoption. Our analysis highlights the tendency among genomics researchers to gradually adopt cloud technology. Efforts made by cloud service providers to promote cloud computing adoption are confronted by researchers’ perpetual cost and security concerns, along with a lack of familiarity with the technology. Further underlying those fears are researchers’ legal responsibility with respect to the data that is stored on the cloud. Alternative consent mechanisms aimed at increasing patients’ control over the use of their data also provide a means to circumvent various institutional and jurisdictional hurdles that restrict access by creating siloed databases. However, the risk of creating new, cloud-based silos may run counter to the goal in genomics research to increase data sharing on a global scale. Public Library of Science 2016-10-18 /pmc/articles/PMC5068798/ /pubmed/27755563 http://dx.doi.org/10.1371/journal.pone.0164347 Text en © 2016 Charlebois et al http://creativecommons.org/licenses/by/4.0/ This is an open access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. |
spellingShingle | Research Article Charlebois, Kathleen Palmour, Nicole Knoppers, Bartha Maria The Adoption of Cloud Computing in the Field of Genomics Research: The Influence of Ethical and Legal Issues |
title | The Adoption of Cloud Computing in the Field of Genomics Research: The Influence of Ethical and Legal Issues |
title_full | The Adoption of Cloud Computing in the Field of Genomics Research: The Influence of Ethical and Legal Issues |
title_fullStr | The Adoption of Cloud Computing in the Field of Genomics Research: The Influence of Ethical and Legal Issues |
title_full_unstemmed | The Adoption of Cloud Computing in the Field of Genomics Research: The Influence of Ethical and Legal Issues |
title_short | The Adoption of Cloud Computing in the Field of Genomics Research: The Influence of Ethical and Legal Issues |
title_sort | adoption of cloud computing in the field of genomics research: the influence of ethical and legal issues |
topic | Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5068798/ https://www.ncbi.nlm.nih.gov/pubmed/27755563 http://dx.doi.org/10.1371/journal.pone.0164347 |
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