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The Danish Prostate Cancer Database

AIM OF DATABASE: The Danish Prostate Cancer Database (DAPROCAdata) is a nationwide clinical cancer database that has prospectively collected data on patients with incident prostate cancer in Denmark since February 2010. The overall aim of the DAPROCAdata is to improve the quality of prostate cancer...

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Autores principales: Nguyen-Nielsen, Mary, Høyer, Søren, Friis, Søren, Hansen, Steinbjørn, Brasso, Klaus, Jakobsen, Erik Breth, Moe, Mette, Larsson, Heidi, Søgaard, Mette, Nakano, Anne, Borre, Michael
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Dove Medical Press 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5098516/
https://www.ncbi.nlm.nih.gov/pubmed/27843346
http://dx.doi.org/10.2147/CLEP.S100256
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author Nguyen-Nielsen, Mary
Høyer, Søren
Friis, Søren
Hansen, Steinbjørn
Brasso, Klaus
Jakobsen, Erik Breth
Moe, Mette
Larsson, Heidi
Søgaard, Mette
Nakano, Anne
Borre, Michael
author_facet Nguyen-Nielsen, Mary
Høyer, Søren
Friis, Søren
Hansen, Steinbjørn
Brasso, Klaus
Jakobsen, Erik Breth
Moe, Mette
Larsson, Heidi
Søgaard, Mette
Nakano, Anne
Borre, Michael
author_sort Nguyen-Nielsen, Mary
collection PubMed
description AIM OF DATABASE: The Danish Prostate Cancer Database (DAPROCAdata) is a nationwide clinical cancer database that has prospectively collected data on patients with incident prostate cancer in Denmark since February 2010. The overall aim of the DAPROCAdata is to improve the quality of prostate cancer care in Denmark by systematically collecting key clinical variables for the purposes of health care monitoring, quality improvement, and research. STUDY POPULATION: All Danish patients with histologically verified prostate cancer are included in the DAPROCAdata. MAIN VARIABLES: The DAPROCAdata registers clinical data and selected characteristics for patients with prostate cancer at diagnosis. Data are collected from the linkage of nationwide health registries and supplemented with online registration of key clinical variables by treating physicians at urological and oncological departments. Main variables include Gleason scores, cancer staging, prostate-specific antigen values, and therapeutic measures (active surveillance, surgery, radiotherapy, endocrine therapy, and chemotherapy). DESCRIPTIVE DATA: In total, 22,332 patients with prostate cancer were registered in DAPROCAdata as of April 2015. A key feature of DAPROCAdata is the routine collection of patient-reported outcome measures (PROM), including data on quality-of-life (pain levels, physical activity, sexual function, depression, urine and fecal incontinence) and lifestyle factors (smoking, alcohol consumption, and body mass index). PROM data are derived from questionnaires distributed at diagnosis and at 1-year and 3-year follow-up. Hitherto, the PROM data have been limited by low completeness (26% among newly diagnosed patients in 2014). CONCLUSION: DAPROCAdata is a comprehensive, yet still young clinical database. Efforts to improve data collection, data validity, and completeness are ongoing and of high priority.
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spelling pubmed-50985162016-11-14 The Danish Prostate Cancer Database Nguyen-Nielsen, Mary Høyer, Søren Friis, Søren Hansen, Steinbjørn Brasso, Klaus Jakobsen, Erik Breth Moe, Mette Larsson, Heidi Søgaard, Mette Nakano, Anne Borre, Michael Clin Epidemiol Review AIM OF DATABASE: The Danish Prostate Cancer Database (DAPROCAdata) is a nationwide clinical cancer database that has prospectively collected data on patients with incident prostate cancer in Denmark since February 2010. The overall aim of the DAPROCAdata is to improve the quality of prostate cancer care in Denmark by systematically collecting key clinical variables for the purposes of health care monitoring, quality improvement, and research. STUDY POPULATION: All Danish patients with histologically verified prostate cancer are included in the DAPROCAdata. MAIN VARIABLES: The DAPROCAdata registers clinical data and selected characteristics for patients with prostate cancer at diagnosis. Data are collected from the linkage of nationwide health registries and supplemented with online registration of key clinical variables by treating physicians at urological and oncological departments. Main variables include Gleason scores, cancer staging, prostate-specific antigen values, and therapeutic measures (active surveillance, surgery, radiotherapy, endocrine therapy, and chemotherapy). DESCRIPTIVE DATA: In total, 22,332 patients with prostate cancer were registered in DAPROCAdata as of April 2015. A key feature of DAPROCAdata is the routine collection of patient-reported outcome measures (PROM), including data on quality-of-life (pain levels, physical activity, sexual function, depression, urine and fecal incontinence) and lifestyle factors (smoking, alcohol consumption, and body mass index). PROM data are derived from questionnaires distributed at diagnosis and at 1-year and 3-year follow-up. Hitherto, the PROM data have been limited by low completeness (26% among newly diagnosed patients in 2014). CONCLUSION: DAPROCAdata is a comprehensive, yet still young clinical database. Efforts to improve data collection, data validity, and completeness are ongoing and of high priority. Dove Medical Press 2016-10-25 /pmc/articles/PMC5098516/ /pubmed/27843346 http://dx.doi.org/10.2147/CLEP.S100256 Text en © 2016 Nguyen-Nielsen et al. This work is published and licensed by Dove Medical Press Limited The full terms of this license are available at https://www.dovepress.com/terms.php and incorporate the Creative Commons Attribution – Non Commercial (unported, v3.0) License (http://creativecommons.org/licenses/by-nc/3.0/). By accessing the work you hereby accept the Terms. Non-commercial uses of the work are permitted without any further permission from Dove Medical Press Limited, provided the work is properly attributed.
spellingShingle Review
Nguyen-Nielsen, Mary
Høyer, Søren
Friis, Søren
Hansen, Steinbjørn
Brasso, Klaus
Jakobsen, Erik Breth
Moe, Mette
Larsson, Heidi
Søgaard, Mette
Nakano, Anne
Borre, Michael
The Danish Prostate Cancer Database
title The Danish Prostate Cancer Database
title_full The Danish Prostate Cancer Database
title_fullStr The Danish Prostate Cancer Database
title_full_unstemmed The Danish Prostate Cancer Database
title_short The Danish Prostate Cancer Database
title_sort danish prostate cancer database
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5098516/
https://www.ncbi.nlm.nih.gov/pubmed/27843346
http://dx.doi.org/10.2147/CLEP.S100256
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