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Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies
BACKGROUND: The past 10 years have witnessed a significant growth in sharing of health data for secondary uses. Alongside this there has been growing interest in the public acceptability of data sharing and data linkage practices. Public acceptance is recognised as crucial for ensuring the legitimac...
Autores principales: | Aitken, Mhairi, de St. Jorre, Jenna, Pagliari, Claudia, Jepson, Ruth, Cunningham-Burley, Sarah |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2016
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5103425/ https://www.ncbi.nlm.nih.gov/pubmed/27832780 http://dx.doi.org/10.1186/s12910-016-0153-x |
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