Meta Consent – A Flexible Solution to the Problem of Secondary Use of Health Data

In this article we provide an in‐depth description of a new model of informed consent called ‘meta consent’ and consider its practical implementation. We explore justifications for preferring meta consent over alternative models of consent as a solution to the problem of secondary use of health data...

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Detalles Bibliográficos
Autores principales: Ploug, Thomas, Holm, Søren
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2016
Materias:
Feature Articles
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5108479/
https://www.ncbi.nlm.nih.gov/pubmed/27628305
http://dx.doi.org/10.1111/bioe.12286
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author Ploug, Thomas
Holm, Søren
author_facet Ploug, Thomas
Holm, Søren
author_sort Ploug, Thomas
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description In this article we provide an in‐depth description of a new model of informed consent called ‘meta consent’ and consider its practical implementation. We explore justifications for preferring meta consent over alternative models of consent as a solution to the problem of secondary use of health data for research. We finally argue that meta consent strikes an appropriate balance between enabling valuable research and protecting the individual.
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spelling pubmed-51084792016-11-16 Meta Consent – A Flexible Solution to the Problem of Secondary Use of Health Data Ploug, Thomas Holm, Søren Bioethics Feature Articles In this article we provide an in‐depth description of a new model of informed consent called ‘meta consent’ and consider its practical implementation. We explore justifications for preferring meta consent over alternative models of consent as a solution to the problem of secondary use of health data for research. We finally argue that meta consent strikes an appropriate balance between enabling valuable research and protecting the individual. John Wiley and Sons Inc. 2016-09-15 2016-11 /pmc/articles/PMC5108479/ /pubmed/27628305 http://dx.doi.org/10.1111/bioe.12286 Text en © 2016 The Authors. Bioethics Published by John Wiley & Sons Ltd This is an open access article under the terms of the Creative Commons Attribution‐NonCommercial‐NoDerivs (http://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Feature Articles
Ploug, Thomas
Holm, Søren
Meta Consent – A Flexible Solution to the Problem of Secondary Use of Health Data
title Meta Consent – A Flexible Solution to the Problem of Secondary Use of Health Data
title_full Meta Consent – A Flexible Solution to the Problem of Secondary Use of Health Data
title_fullStr Meta Consent – A Flexible Solution to the Problem of Secondary Use of Health Data
title_full_unstemmed Meta Consent – A Flexible Solution to the Problem of Secondary Use of Health Data
title_short Meta Consent – A Flexible Solution to the Problem of Secondary Use of Health Data
title_sort meta consent – a flexible solution to the problem of secondary use of health data
topic Feature Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5108479/
https://www.ncbi.nlm.nih.gov/pubmed/27628305
http://dx.doi.org/10.1111/bioe.12286
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AT holmsøren metaconsentaflexiblesolutiontotheproblemofsecondaryuseofhealthdata

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