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Community engagement to enhance trust between Gypsy/Travellers, and maternity, early years’ and child dental health services: protocol for a multi-method exploratory study

BACKGROUND: Gypsy/Travellers have poor health and experience discrimination alongside structural and cultural barriers when accessing health services and consequently may mistrust those services. Our study aims to investigate which approaches to community engagement are most likely to be effective a...

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Autores principales: McFadden, Alison, Atkin, Karl, Bell, Kerry, Innes, Nicola, Jackson, Cath, Jones, Helen, MacGillivray, Steve, Siebelt, Lindsay
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5109772/
https://www.ncbi.nlm.nih.gov/pubmed/27842597
http://dx.doi.org/10.1186/s12939-016-0475-9
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author McFadden, Alison
Atkin, Karl
Bell, Kerry
Innes, Nicola
Jackson, Cath
Jones, Helen
MacGillivray, Steve
Siebelt, Lindsay
author_facet McFadden, Alison
Atkin, Karl
Bell, Kerry
Innes, Nicola
Jackson, Cath
Jones, Helen
MacGillivray, Steve
Siebelt, Lindsay
author_sort McFadden, Alison
collection PubMed
description BACKGROUND: Gypsy/Travellers have poor health and experience discrimination alongside structural and cultural barriers when accessing health services and consequently may mistrust those services. Our study aims to investigate which approaches to community engagement are most likely to be effective at enhancing trust between Gypsy/Travellers and mainstream health services. METHODS: This multi-method 30-month study, commenced in June 2015, and comprises four stages. 1. Three related reviews: a) systematic review of Gypsy/Travellers’ access to health services; b) systematic review of reviews of how trust has been conceptualised within healthcare; c) realist synthesis of community engagement approaches to enhance trust and increase Gypsy/Travellers’ participation in health services. The reviews will consider any economic literature; 2. Online consultation with health and social care practitioners, and civil society organisations on existing engagement activities, including perceptions of barriers and good practice; 3. Four in-depth case studies of different Gypsy/Traveller communities, focusing on maternity, early years and child dental health services. The case studies include the views of 32–48 mothers of pre-school children, 32–40 healthcare providers and 8–12 informants from third sector organisations. 4. Two stakeholder workshops exploring whether policy options are realistic, sustainable and replicable. Case study data will be analysed thematically informed by the evaluative framework derived from the realist synthesis in stage one. The main outputs will be: a) an evaluative framework of Gypsy/Travellers’ engagement with health services; b) recommendations for policy and practice; c) evidence on which to base future implementation strategies including estimation of costs. DISCUSSION: Our novel multi-method study seeks to provide recommendations for policy and practice that have potential to improve uptake and delivery of health services, and to reduce lifetime health inequalities for Gypsy/Travellers. The findings may have wider resonance for other marginalised populations. Strengths and limitations of the study are discussed. TRIAL REGISTRATION: Prospero registration for literature reviews: CRD42015021955 and CRD42015021950 UKCRN reference: 20036
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spelling pubmed-51097722016-11-28 Community engagement to enhance trust between Gypsy/Travellers, and maternity, early years’ and child dental health services: protocol for a multi-method exploratory study McFadden, Alison Atkin, Karl Bell, Kerry Innes, Nicola Jackson, Cath Jones, Helen MacGillivray, Steve Siebelt, Lindsay Int J Equity Health Study Protocol BACKGROUND: Gypsy/Travellers have poor health and experience discrimination alongside structural and cultural barriers when accessing health services and consequently may mistrust those services. Our study aims to investigate which approaches to community engagement are most likely to be effective at enhancing trust between Gypsy/Travellers and mainstream health services. METHODS: This multi-method 30-month study, commenced in June 2015, and comprises four stages. 1. Three related reviews: a) systematic review of Gypsy/Travellers’ access to health services; b) systematic review of reviews of how trust has been conceptualised within healthcare; c) realist synthesis of community engagement approaches to enhance trust and increase Gypsy/Travellers’ participation in health services. The reviews will consider any economic literature; 2. Online consultation with health and social care practitioners, and civil society organisations on existing engagement activities, including perceptions of barriers and good practice; 3. Four in-depth case studies of different Gypsy/Traveller communities, focusing on maternity, early years and child dental health services. The case studies include the views of 32–48 mothers of pre-school children, 32–40 healthcare providers and 8–12 informants from third sector organisations. 4. Two stakeholder workshops exploring whether policy options are realistic, sustainable and replicable. Case study data will be analysed thematically informed by the evaluative framework derived from the realist synthesis in stage one. The main outputs will be: a) an evaluative framework of Gypsy/Travellers’ engagement with health services; b) recommendations for policy and practice; c) evidence on which to base future implementation strategies including estimation of costs. DISCUSSION: Our novel multi-method study seeks to provide recommendations for policy and practice that have potential to improve uptake and delivery of health services, and to reduce lifetime health inequalities for Gypsy/Travellers. The findings may have wider resonance for other marginalised populations. Strengths and limitations of the study are discussed. TRIAL REGISTRATION: Prospero registration for literature reviews: CRD42015021955 and CRD42015021950 UKCRN reference: 20036 BioMed Central 2016-11-14 /pmc/articles/PMC5109772/ /pubmed/27842597 http://dx.doi.org/10.1186/s12939-016-0475-9 Text en © The Author(s). 2016 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Study Protocol
McFadden, Alison
Atkin, Karl
Bell, Kerry
Innes, Nicola
Jackson, Cath
Jones, Helen
MacGillivray, Steve
Siebelt, Lindsay
Community engagement to enhance trust between Gypsy/Travellers, and maternity, early years’ and child dental health services: protocol for a multi-method exploratory study
title Community engagement to enhance trust between Gypsy/Travellers, and maternity, early years’ and child dental health services: protocol for a multi-method exploratory study
title_full Community engagement to enhance trust between Gypsy/Travellers, and maternity, early years’ and child dental health services: protocol for a multi-method exploratory study
title_fullStr Community engagement to enhance trust between Gypsy/Travellers, and maternity, early years’ and child dental health services: protocol for a multi-method exploratory study
title_full_unstemmed Community engagement to enhance trust between Gypsy/Travellers, and maternity, early years’ and child dental health services: protocol for a multi-method exploratory study
title_short Community engagement to enhance trust between Gypsy/Travellers, and maternity, early years’ and child dental health services: protocol for a multi-method exploratory study
title_sort community engagement to enhance trust between gypsy/travellers, and maternity, early years’ and child dental health services: protocol for a multi-method exploratory study
topic Study Protocol
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5109772/
https://www.ncbi.nlm.nih.gov/pubmed/27842597
http://dx.doi.org/10.1186/s12939-016-0475-9
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