Learning about Haemophilia: An Alternative Source of Information

In order to learn about Haemophilia from the point of view of the sufferers, I interviewed six severely affected haemophiliacs, discussing with them their past experience, current status and treatment. I found them to be an optimistic and independent group who, despite their memories of a painful childhood and their current disablement, contrived to live in the present with gusto and vigour. They were very knowledgeable about Haemophilia and were happy to teach me, thus providing me with a valuable body of knowledge and ideas on the subject.