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Parents’ Experiences of Receiving the Initial Positive Newborn Screening (NBS) Result for Cystic Fibrosis and Sickle Cell Disease

The clinical advantages of the newborn screening programme (NBS) in the UK are well described in the literature. However, there has been little exploration of the psychosocial impact on the family. This study followed the principles of grounded theory to explore parents’ experiences of receiving the...

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Detalles Bibliográficos
Autores principales: Chudleigh, Jane, Buckingham, Sarah, Dignan, Jo, O’Driscoll, Sandra, Johnson, Kemi, Rees, David, Wyatt, Hilary, Metcalfe, Alison
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5114338/
https://www.ncbi.nlm.nih.gov/pubmed/27098418
http://dx.doi.org/10.1007/s10897-016-9959-4