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Parents’ Experiences of Receiving the Initial Positive Newborn Screening (NBS) Result for Cystic Fibrosis and Sickle Cell Disease
The clinical advantages of the newborn screening programme (NBS) in the UK are well described in the literature. However, there has been little exploration of the psychosocial impact on the family. This study followed the principles of grounded theory to explore parents’ experiences of receiving the...
Autores principales: | Chudleigh, Jane, Buckingham, Sarah, Dignan, Jo, O’Driscoll, Sandra, Johnson, Kemi, Rees, David, Wyatt, Hilary, Metcalfe, Alison |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer US
2016
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5114338/ https://www.ncbi.nlm.nih.gov/pubmed/27098418 http://dx.doi.org/10.1007/s10897-016-9959-4 |
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