Conducting a large, multi-site survey about patients’ views on broad consent: challenges and solutions

BACKGROUND: As biobanks play an increasing role in the genomic research that will lead to precision medicine, input from diverse and large populations of patients in a variety of health care settings will be important in order to successfully carry out such studies. One important topic is participan...

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Detalles Bibliográficos
Autores principales: Smith, Maureen E., Sanderson, Saskia C., Brothers, Kyle B., Myers, Melanie F., McCormick, Jennifer, Aufox, Sharon, Shrubsole, Martha J., Garrison, Nanibaá A., Mercaldo, Nathaniel D., Schildcrout, Jonathan S., Clayton, Ellen Wright, Antommaria, Armand H. Matheny, Basford, Melissa, Brilliant, Murray, Connolly, John J., Fullerton, Stephanie M., Horowitz, Carol R., Jarvik, Gail P., Kaufman, Dave, Kitchner, Terri, Li, Rongling, Ludman, Evette J., McCarty, Catherine, McManus, Valerie, Stallings, Sarah, Williams, Janet L., Holm, Ingrid A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2016
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5122167/
https://www.ncbi.nlm.nih.gov/pubmed/27881091
http://dx.doi.org/10.1186/s12874-016-0263-7

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