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The Experience of Older People in the Shared Decision-Making Process in Advanced Kidney Care
Introduction. This qualitative descriptive study was designed to understand the experiences of older people (>70 years) when making a decision about renal replacement therapy. This was a coproduced study, whereby patients and carers were involved in all aspects of the research process. Methods. A...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Hindawi Publishing Corporation
2016
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5136397/ https://www.ncbi.nlm.nih.gov/pubmed/27990438 http://dx.doi.org/10.1155/2016/7859725 |
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author | Thomas, Nicola Jenkins, Karen McManus, Breeda Gracey, Brian |
author_facet | Thomas, Nicola Jenkins, Karen McManus, Breeda Gracey, Brian |
author_sort | Thomas, Nicola |
collection | PubMed |
description | Introduction. This qualitative descriptive study was designed to understand the experiences of older people (>70 years) when making a decision about renal replacement therapy. This was a coproduced study, whereby patients and carers were involved in all aspects of the research process. Methods. A Patient and Carer Group undertook volunteer and research training. The group developed the interview questions and interviewed 29 people who had commenced dialysis or made a decision not to have dialysis. Interview data were transcribed and analysed, and common themes were identified. Results. 22 men and 7 women (mean age 77.4 yrs) from two hospitals were interviewed. 18 had chosen haemodialysis, 6 peritoneal dialysis, and 5 supportive care. The majority of patients were involved in the dialysis decision. Most were satisfied with the amount of information that they received, although some identified that the quality of the information could be improved, especially how daily living can be affected by dialysis. Conclusion. Our findings show that overall older patients were involved in the dialysis decision along with their families. Our approach is innovative because it is the first time that patients and carers have been involved in a coproduced study about shared decision-making. |
format | Online Article Text |
id | pubmed-5136397 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2016 |
publisher | Hindawi Publishing Corporation |
record_format | MEDLINE/PubMed |
spelling | pubmed-51363972016-12-18 The Experience of Older People in the Shared Decision-Making Process in Advanced Kidney Care Thomas, Nicola Jenkins, Karen McManus, Breeda Gracey, Brian Biomed Res Int Research Article Introduction. This qualitative descriptive study was designed to understand the experiences of older people (>70 years) when making a decision about renal replacement therapy. This was a coproduced study, whereby patients and carers were involved in all aspects of the research process. Methods. A Patient and Carer Group undertook volunteer and research training. The group developed the interview questions and interviewed 29 people who had commenced dialysis or made a decision not to have dialysis. Interview data were transcribed and analysed, and common themes were identified. Results. 22 men and 7 women (mean age 77.4 yrs) from two hospitals were interviewed. 18 had chosen haemodialysis, 6 peritoneal dialysis, and 5 supportive care. The majority of patients were involved in the dialysis decision. Most were satisfied with the amount of information that they received, although some identified that the quality of the information could be improved, especially how daily living can be affected by dialysis. Conclusion. Our findings show that overall older patients were involved in the dialysis decision along with their families. Our approach is innovative because it is the first time that patients and carers have been involved in a coproduced study about shared decision-making. Hindawi Publishing Corporation 2016 2016-11-20 /pmc/articles/PMC5136397/ /pubmed/27990438 http://dx.doi.org/10.1155/2016/7859725 Text en Copyright © 2016 Nicola Thomas et al. https://creativecommons.org/licenses/by/4.0/ This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Research Article Thomas, Nicola Jenkins, Karen McManus, Breeda Gracey, Brian The Experience of Older People in the Shared Decision-Making Process in Advanced Kidney Care |
title | The Experience of Older People in the Shared Decision-Making Process in Advanced Kidney Care |
title_full | The Experience of Older People in the Shared Decision-Making Process in Advanced Kidney Care |
title_fullStr | The Experience of Older People in the Shared Decision-Making Process in Advanced Kidney Care |
title_full_unstemmed | The Experience of Older People in the Shared Decision-Making Process in Advanced Kidney Care |
title_short | The Experience of Older People in the Shared Decision-Making Process in Advanced Kidney Care |
title_sort | experience of older people in the shared decision-making process in advanced kidney care |
topic | Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5136397/ https://www.ncbi.nlm.nih.gov/pubmed/27990438 http://dx.doi.org/10.1155/2016/7859725 |
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