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A devolved model for public involvement in the field of mental health research: case study learning

BACKGROUND: Patient and public involvement in all aspects of research is espoused and there is a continued interest in understanding its wider impact. Existing investigations have identified both beneficial outcomes and remaining issues. This paper presents the impact of public involvement in one ca...

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Autores principales: Moule, Pam, Davies, Rosie
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2015
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5139053/
https://www.ncbi.nlm.nih.gov/pubmed/26569546
http://dx.doi.org/10.1111/hex.12426
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author Moule, Pam
Davies, Rosie
author_facet Moule, Pam
Davies, Rosie
author_sort Moule, Pam
collection PubMed
description BACKGROUND: Patient and public involvement in all aspects of research is espoused and there is a continued interest in understanding its wider impact. Existing investigations have identified both beneficial outcomes and remaining issues. This paper presents the impact of public involvement in one case study led by a mental health charity conducted as part of a larger research project. The case study used a devolved model of working, contracting with service user‐led organizations to maximize the benefits of local knowledge on the implementation of personalized budgets, support recruitment and local user‐led organizations. OBJECTIVE: To understand the processes and impact of public involvement in a devolved model of working with user‐led organizations. DESIGN: Multiple data collection methods were employed throughout 2012. These included interviews with the researchers (n = 10) and research partners (n = 5), observation of two case study meetings and the review of key case study documentation. Analysis was conducted in NVivo10 using a coding framework developed following a literature review. FINDINGS: Five key themes emerged from the data; Devolved model, Nature of involvement, Enabling factors, Implementation challenges and Impact. While there were some challenges of implementing the devolved model it is clear that our findings add to the growing understanding of the positive benefits research partners can bring to complex research. CONCLUSIONS: A devolved model can support the involvement of user‐led organizations in research if there is a clear understanding of the underpinning philosophy and support mechanisms are in place.
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spelling pubmed-51390532016-12-12 A devolved model for public involvement in the field of mental health research: case study learning Moule, Pam Davies, Rosie Health Expect Original Research Papers BACKGROUND: Patient and public involvement in all aspects of research is espoused and there is a continued interest in understanding its wider impact. Existing investigations have identified both beneficial outcomes and remaining issues. This paper presents the impact of public involvement in one case study led by a mental health charity conducted as part of a larger research project. The case study used a devolved model of working, contracting with service user‐led organizations to maximize the benefits of local knowledge on the implementation of personalized budgets, support recruitment and local user‐led organizations. OBJECTIVE: To understand the processes and impact of public involvement in a devolved model of working with user‐led organizations. DESIGN: Multiple data collection methods were employed throughout 2012. These included interviews with the researchers (n = 10) and research partners (n = 5), observation of two case study meetings and the review of key case study documentation. Analysis was conducted in NVivo10 using a coding framework developed following a literature review. FINDINGS: Five key themes emerged from the data; Devolved model, Nature of involvement, Enabling factors, Implementation challenges and Impact. While there were some challenges of implementing the devolved model it is clear that our findings add to the growing understanding of the positive benefits research partners can bring to complex research. CONCLUSIONS: A devolved model can support the involvement of user‐led organizations in research if there is a clear understanding of the underpinning philosophy and support mechanisms are in place. John Wiley and Sons Inc. 2015-11-16 2016-12 /pmc/articles/PMC5139053/ /pubmed/26569546 http://dx.doi.org/10.1111/hex.12426 Text en © 2015 The Authors. Health Expectations Published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution (http://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Research Papers
Moule, Pam
Davies, Rosie
A devolved model for public involvement in the field of mental health research: case study learning
title A devolved model for public involvement in the field of mental health research: case study learning
title_full A devolved model for public involvement in the field of mental health research: case study learning
title_fullStr A devolved model for public involvement in the field of mental health research: case study learning
title_full_unstemmed A devolved model for public involvement in the field of mental health research: case study learning
title_short A devolved model for public involvement in the field of mental health research: case study learning
title_sort devolved model for public involvement in the field of mental health research: case study learning
topic Original Research Papers
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5139053/
https://www.ncbi.nlm.nih.gov/pubmed/26569546
http://dx.doi.org/10.1111/hex.12426
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