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Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme
The Scottish Health Informatics Programme (SHIP) was a Scotland-wide research programme exploring ways of collecting, managing and analysing electronic patient records for health research. As part of the SHIP public engagement work stream, a series of eight focus groups and a stakeholder workshop we...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2016
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5210028/ https://www.ncbi.nlm.nih.gov/pubmed/28066123 http://dx.doi.org/10.1093/scipol/scv075 |
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author | Aitken, Mhairi Cunningham-Burley, Sarah Pagliari, Claudia |
author_facet | Aitken, Mhairi Cunningham-Burley, Sarah Pagliari, Claudia |
author_sort | Aitken, Mhairi |
collection | PubMed |
description | The Scottish Health Informatics Programme (SHIP) was a Scotland-wide research programme exploring ways of collecting, managing and analysing electronic patient records for health research. As part of the SHIP public engagement work stream, a series of eight focus groups and a stakeholder workshop were conducted to explore perceptions of the role, relevance and functions of trust (or trustworthiness) in relation to research practices. The findings demonstrate that the public’s relationships of trust and/or mistrust in science and research are not straightforward. This paper aims to move beyond simple descriptions of whether publics trust researchers, or in whom members of the public place their trust, and to explore more fully the bases of public trust/mistrust in science, what trust implies and equally what it means for research/researchers to be trustworthy. This has important implications for public engagement in interdisciplinary projects. |
format | Online Article Text |
id | pubmed-5210028 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2016 |
publisher | Oxford University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-52100282017-01-05 Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme Aitken, Mhairi Cunningham-Burley, Sarah Pagliari, Claudia Sci Public Policy Main Articles The Scottish Health Informatics Programme (SHIP) was a Scotland-wide research programme exploring ways of collecting, managing and analysing electronic patient records for health research. As part of the SHIP public engagement work stream, a series of eight focus groups and a stakeholder workshop were conducted to explore perceptions of the role, relevance and functions of trust (or trustworthiness) in relation to research practices. The findings demonstrate that the public’s relationships of trust and/or mistrust in science and research are not straightforward. This paper aims to move beyond simple descriptions of whether publics trust researchers, or in whom members of the public place their trust, and to explore more fully the bases of public trust/mistrust in science, what trust implies and equally what it means for research/researchers to be trustworthy. This has important implications for public engagement in interdisciplinary projects. Oxford University Press 2016-10 2016-05-11 /pmc/articles/PMC5210028/ /pubmed/28066123 http://dx.doi.org/10.1093/scipol/scv075 Text en © The Author 2016. Published by Oxford University Press. http://creativecommons.org/licenses/by/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Main Articles Aitken, Mhairi Cunningham-Burley, Sarah Pagliari, Claudia Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme |
title | Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme |
title_full | Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme |
title_fullStr | Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme |
title_full_unstemmed | Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme |
title_short | Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme |
title_sort | moving from trust to trustworthiness: experiences of public engagement in the scottish health informatics programme |
topic | Main Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5210028/ https://www.ncbi.nlm.nih.gov/pubmed/28066123 http://dx.doi.org/10.1093/scipol/scv075 |
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