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Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme

The Scottish Health Informatics Programme (SHIP) was a Scotland-wide research programme exploring ways of collecting, managing and analysing electronic patient records for health research. As part of the SHIP public engagement work stream, a series of eight focus groups and a stakeholder workshop we...

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Detalles Bibliográficos
Autores principales: Aitken, Mhairi, Cunningham-Burley, Sarah, Pagliari, Claudia
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5210028/
https://www.ncbi.nlm.nih.gov/pubmed/28066123
http://dx.doi.org/10.1093/scipol/scv075
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author Aitken, Mhairi
Cunningham-Burley, Sarah
Pagliari, Claudia
author_facet Aitken, Mhairi
Cunningham-Burley, Sarah
Pagliari, Claudia
author_sort Aitken, Mhairi
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description The Scottish Health Informatics Programme (SHIP) was a Scotland-wide research programme exploring ways of collecting, managing and analysing electronic patient records for health research. As part of the SHIP public engagement work stream, a series of eight focus groups and a stakeholder workshop were conducted to explore perceptions of the role, relevance and functions of trust (or trustworthiness) in relation to research practices. The findings demonstrate that the public’s relationships of trust and/or mistrust in science and research are not straightforward. This paper aims to move beyond simple descriptions of whether publics trust researchers, or in whom members of the public place their trust, and to explore more fully the bases of public trust/mistrust in science, what trust implies and equally what it means for research/researchers to be trustworthy. This has important implications for public engagement in interdisciplinary projects.
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spelling pubmed-52100282017-01-05 Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme Aitken, Mhairi Cunningham-Burley, Sarah Pagliari, Claudia Sci Public Policy Main Articles The Scottish Health Informatics Programme (SHIP) was a Scotland-wide research programme exploring ways of collecting, managing and analysing electronic patient records for health research. As part of the SHIP public engagement work stream, a series of eight focus groups and a stakeholder workshop were conducted to explore perceptions of the role, relevance and functions of trust (or trustworthiness) in relation to research practices. The findings demonstrate that the public’s relationships of trust and/or mistrust in science and research are not straightforward. This paper aims to move beyond simple descriptions of whether publics trust researchers, or in whom members of the public place their trust, and to explore more fully the bases of public trust/mistrust in science, what trust implies and equally what it means for research/researchers to be trustworthy. This has important implications for public engagement in interdisciplinary projects. Oxford University Press 2016-10 2016-05-11 /pmc/articles/PMC5210028/ /pubmed/28066123 http://dx.doi.org/10.1093/scipol/scv075 Text en © The Author 2016. Published by Oxford University Press. http://creativecommons.org/licenses/by/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Main Articles
Aitken, Mhairi
Cunningham-Burley, Sarah
Pagliari, Claudia
Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme
title Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme
title_full Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme
title_fullStr Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme
title_full_unstemmed Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme
title_short Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme
title_sort moving from trust to trustworthiness: experiences of public engagement in the scottish health informatics programme
topic Main Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5210028/
https://www.ncbi.nlm.nih.gov/pubmed/28066123
http://dx.doi.org/10.1093/scipol/scv075
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