Cargando…

The meaning of participation for children in Malawi: insights from children and caregivers

BACKGROUND: Global rates of childhood disability are high and are estimated through tools that focus on impairment, functioning and activity. The International Classification of Functioning, Disability and Health has promoted a framework to define disability more broadly and to include participation...

Descripción completa

Detalles Bibliográficos
Autores principales: Nelson, F., Masulani‐Mwale, C., Richards, E., Theobald, S., Gladstone, M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5215659/
https://www.ncbi.nlm.nih.gov/pubmed/27807865
http://dx.doi.org/10.1111/cch.12422
_version_ 1782491797216296960
author Nelson, F.
Masulani‐Mwale, C.
Richards, E.
Theobald, S.
Gladstone, M.
author_facet Nelson, F.
Masulani‐Mwale, C.
Richards, E.
Theobald, S.
Gladstone, M.
author_sort Nelson, F.
collection PubMed
description BACKGROUND: Global rates of childhood disability are high and are estimated through tools that focus on impairment, functioning and activity. The International Classification of Functioning, Disability and Health has promoted a framework to define disability more broadly and to include participation. New outcome measures have now been created to assess participation of children with disabilities for use in research and clinical practice. In order to use these in other cultural contexts, the validity of concepts and tools developed should be evaluated prior to use. We aim to create a tool that would be relevant and valid to the cultural context of Malawi, but to do so, we first need to understand what participation means to children in Malawi. AIM: The aim of this study is to explore what participation means for children (including those with and without disability) in rural Northern Malawi. METHODS: We used semi‐structured interviews, focus group discussions, participatory action research and direct observations. Sixty‐four participants were involved including children (8–18 years) with (14) and without disabilities (17), carers of children with (8) and without (6) disabilities, community members (14) and professionals/healthcare workers (5). Data analysis was carried out using the ‘framework’ approach. RESULTS: Activities reported by children, carers and community members fell within seven main themes or areas of participation. These include contribution to family life (chores and work), social activities (communicating and being with others), social activities (unstructured play), structured and organized activities, activities of daily living, education and schooling and entertainment (listening to and watching media). CONCLUSIONS: This study provides concepts and ideas that may be utilized in developing a suitable measure of participation of children with disabilities for rural African settings. Many of the most important activities for all children relate to family and day‐to‐day social life.
format Online
Article
Text
id pubmed-5215659
institution National Center for Biotechnology Information
language English
publishDate 2016
publisher John Wiley and Sons Inc.
record_format MEDLINE/PubMed
spelling pubmed-52156592017-01-18 The meaning of participation for children in Malawi: insights from children and caregivers Nelson, F. Masulani‐Mwale, C. Richards, E. Theobald, S. Gladstone, M. Child Care Health Dev Original Articles BACKGROUND: Global rates of childhood disability are high and are estimated through tools that focus on impairment, functioning and activity. The International Classification of Functioning, Disability and Health has promoted a framework to define disability more broadly and to include participation. New outcome measures have now been created to assess participation of children with disabilities for use in research and clinical practice. In order to use these in other cultural contexts, the validity of concepts and tools developed should be evaluated prior to use. We aim to create a tool that would be relevant and valid to the cultural context of Malawi, but to do so, we first need to understand what participation means to children in Malawi. AIM: The aim of this study is to explore what participation means for children (including those with and without disability) in rural Northern Malawi. METHODS: We used semi‐structured interviews, focus group discussions, participatory action research and direct observations. Sixty‐four participants were involved including children (8–18 years) with (14) and without disabilities (17), carers of children with (8) and without (6) disabilities, community members (14) and professionals/healthcare workers (5). Data analysis was carried out using the ‘framework’ approach. RESULTS: Activities reported by children, carers and community members fell within seven main themes or areas of participation. These include contribution to family life (chores and work), social activities (communicating and being with others), social activities (unstructured play), structured and organized activities, activities of daily living, education and schooling and entertainment (listening to and watching media). CONCLUSIONS: This study provides concepts and ideas that may be utilized in developing a suitable measure of participation of children with disabilities for rural African settings. Many of the most important activities for all children relate to family and day‐to‐day social life. John Wiley and Sons Inc. 2016-11-02 2017-01 /pmc/articles/PMC5215659/ /pubmed/27807865 http://dx.doi.org/10.1111/cch.12422 Text en © 2016 The Authors. Child: Care, Health and Development Published by John Wiley & Sons Ltd This is an open access article under the terms of the Creative Commons Attribution (http://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Articles
Nelson, F.
Masulani‐Mwale, C.
Richards, E.
Theobald, S.
Gladstone, M.
The meaning of participation for children in Malawi: insights from children and caregivers
title The meaning of participation for children in Malawi: insights from children and caregivers
title_full The meaning of participation for children in Malawi: insights from children and caregivers
title_fullStr The meaning of participation for children in Malawi: insights from children and caregivers
title_full_unstemmed The meaning of participation for children in Malawi: insights from children and caregivers
title_short The meaning of participation for children in Malawi: insights from children and caregivers
title_sort meaning of participation for children in malawi: insights from children and caregivers
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5215659/
https://www.ncbi.nlm.nih.gov/pubmed/27807865
http://dx.doi.org/10.1111/cch.12422
work_keys_str_mv AT nelsonf themeaningofparticipationforchildreninmalawiinsightsfromchildrenandcaregivers
AT masulanimwalec themeaningofparticipationforchildreninmalawiinsightsfromchildrenandcaregivers
AT richardse themeaningofparticipationforchildreninmalawiinsightsfromchildrenandcaregivers
AT theobalds themeaningofparticipationforchildreninmalawiinsightsfromchildrenandcaregivers
AT gladstonem themeaningofparticipationforchildreninmalawiinsightsfromchildrenandcaregivers
AT nelsonf meaningofparticipationforchildreninmalawiinsightsfromchildrenandcaregivers
AT masulanimwalec meaningofparticipationforchildreninmalawiinsightsfromchildrenandcaregivers
AT richardse meaningofparticipationforchildreninmalawiinsightsfromchildrenandcaregivers
AT theobalds meaningofparticipationforchildreninmalawiinsightsfromchildrenandcaregivers
AT gladstonem meaningofparticipationforchildreninmalawiinsightsfromchildrenandcaregivers