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Validity of three asthma-specific quality of life questionnaires: the patients' perspective

OBJECTIVES: It is not known which of the many asthma-specific quality of life (QoL) questionnaires best capture the lived experience of people with asthma. The objective of this study was to explore patients' views of three commonly used asthma-specific QoL questionnaires. DESIGN: Qualitative s...

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Autores principales: Apfelbacher, Christian J, Jones, Christina J, Frew, Anthony, Smith, Helen
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5223641/
https://www.ncbi.nlm.nih.gov/pubmed/28007706
http://dx.doi.org/10.1136/bmjopen-2016-011793
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author Apfelbacher, Christian J
Jones, Christina J
Frew, Anthony
Smith, Helen
author_facet Apfelbacher, Christian J
Jones, Christina J
Frew, Anthony
Smith, Helen
author_sort Apfelbacher, Christian J
collection PubMed
description OBJECTIVES: It is not known which of the many asthma-specific quality of life (QoL) questionnaires best capture the lived experience of people with asthma. The objective of this study was to explore patients' views of three commonly used asthma-specific QoL questionnaires. DESIGN: Qualitative study using semistructured interviews. SETTING: Primary and secondary care in Brighton and Hove, UK. PARTICIPANTS: 30 adult people with a physician-diagnosis of asthma who were asked to complete the Juniper Asthma Quality of Life Questionnaire (AQLQ-J), the Sydney Asthma Quality of Life Questionnaire (AQLQ-S) and the Living with Asthma Questionnaire (LWAQ) to elicit their views on the content validity of these. RESULTS: Thematic content analysis revealed a lack of congruence between the concerns of people with asthma and the questionnaire content in terms of missing (eg, allergies) and irrelevant (eg, smoky restaurants) content. The AQLQ-J was perceived as a ‘narrow’, ‘medical’ questionnaire focused on symptoms, the environment and functional ability. In contrast, the LWAQ and the AQLQ-S were perceived to be ‘non-medical’. The LWAQ was described as a ‘test’ and as a wide-ranging, embracing and holistic questionnaire. Its strong emotional focus was irritating to some. The AQLQ-S was described as a simple, quick and easy questionnaire, although there was a perception that it was lacking in depth. CONCLUSIONS: Patient interviews highlighted strengths and shortcomings in the content validity of these three asthma-specific questionnaires. For patients, the AQLQ-S content seemed to be the most pertinent in its adequacy of coverage of medical, social and emotional aspects of health-related QoL in asthma.
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spelling pubmed-52236412017-01-13 Validity of three asthma-specific quality of life questionnaires: the patients' perspective Apfelbacher, Christian J Jones, Christina J Frew, Anthony Smith, Helen BMJ Open Qualitative Research OBJECTIVES: It is not known which of the many asthma-specific quality of life (QoL) questionnaires best capture the lived experience of people with asthma. The objective of this study was to explore patients' views of three commonly used asthma-specific QoL questionnaires. DESIGN: Qualitative study using semistructured interviews. SETTING: Primary and secondary care in Brighton and Hove, UK. PARTICIPANTS: 30 adult people with a physician-diagnosis of asthma who were asked to complete the Juniper Asthma Quality of Life Questionnaire (AQLQ-J), the Sydney Asthma Quality of Life Questionnaire (AQLQ-S) and the Living with Asthma Questionnaire (LWAQ) to elicit their views on the content validity of these. RESULTS: Thematic content analysis revealed a lack of congruence between the concerns of people with asthma and the questionnaire content in terms of missing (eg, allergies) and irrelevant (eg, smoky restaurants) content. The AQLQ-J was perceived as a ‘narrow’, ‘medical’ questionnaire focused on symptoms, the environment and functional ability. In contrast, the LWAQ and the AQLQ-S were perceived to be ‘non-medical’. The LWAQ was described as a ‘test’ and as a wide-ranging, embracing and holistic questionnaire. Its strong emotional focus was irritating to some. The AQLQ-S was described as a simple, quick and easy questionnaire, although there was a perception that it was lacking in depth. CONCLUSIONS: Patient interviews highlighted strengths and shortcomings in the content validity of these three asthma-specific questionnaires. For patients, the AQLQ-S content seemed to be the most pertinent in its adequacy of coverage of medical, social and emotional aspects of health-related QoL in asthma. BMJ Publishing Group 2016-12-22 /pmc/articles/PMC5223641/ /pubmed/28007706 http://dx.doi.org/10.1136/bmjopen-2016-011793 Text en Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://www.bmj.com/company/products-services/rights-and-licensing/ This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/
spellingShingle Qualitative Research
Apfelbacher, Christian J
Jones, Christina J
Frew, Anthony
Smith, Helen
Validity of three asthma-specific quality of life questionnaires: the patients' perspective
title Validity of three asthma-specific quality of life questionnaires: the patients' perspective
title_full Validity of three asthma-specific quality of life questionnaires: the patients' perspective
title_fullStr Validity of three asthma-specific quality of life questionnaires: the patients' perspective
title_full_unstemmed Validity of three asthma-specific quality of life questionnaires: the patients' perspective
title_short Validity of three asthma-specific quality of life questionnaires: the patients' perspective
title_sort validity of three asthma-specific quality of life questionnaires: the patients' perspective
topic Qualitative Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5223641/
https://www.ncbi.nlm.nih.gov/pubmed/28007706
http://dx.doi.org/10.1136/bmjopen-2016-011793
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