Development of a disease-specific quality of life questionnaire for patients with aplastic anemia and/or paroxysmal nocturnal hemoglobinuria (QLQ-AA/PNH)—report on phases I and II

Acquired aplastic anemia (AA) and paroxysmal nocturnal hemoglobinuria (PNH) are interrelated ultra-rare diseases. Quality of life (QoL) evaluation tools used in studies for AA and PNH are unspecific and designed for cancer patients (e.g., the European Organization for Research and Treatment of Cance...

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Detalles Bibliográficos
Autores principales: Groth, Martha, Singer, Susanne, Niedeggen, Cathrin, Petermann-Meyer, Andrea, Röth, Alexander, Schrezenmeier, Hubert, Höchsmann, Britta, Brümmendorf, Tim H., Panse, Jens
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2016
Materias:
Original Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5226974/
https://www.ncbi.nlm.nih.gov/pubmed/27837250
http://dx.doi.org/10.1007/s00277-016-2867-8

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