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Ethical standards for mental health and psychosocial support research in emergencies: review of literature and current debates

BACKGROUND: Research in emergencies is needed to understand the prevalence of mental health and psychosocial problems and strengthen the evidence base for interventions. All research - including operational needs assessments, programme monitoring and evaluation, and formal academic research - must b...

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Autores principales: Chiumento, Anna, Rahman, Atif, Frith, Lucy, Snider, Leslie, Tol, Wietse A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5299703/
https://www.ncbi.nlm.nih.gov/pubmed/28178981
http://dx.doi.org/10.1186/s12992-017-0231-y
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author Chiumento, Anna
Rahman, Atif
Frith, Lucy
Snider, Leslie
Tol, Wietse A.
author_facet Chiumento, Anna
Rahman, Atif
Frith, Lucy
Snider, Leslie
Tol, Wietse A.
author_sort Chiumento, Anna
collection PubMed
description BACKGROUND: Research in emergencies is needed to understand the prevalence of mental health and psychosocial problems and strengthen the evidence base for interventions. All research - including operational needs assessments, programme monitoring and evaluation, and formal academic research - must be conducted ethically. While there is broad consensus on fundamental principles codified in research ethics guidelines, these do not address the ethical specificities of conducting mental health and psychosocial support (MHPSS) research with adults in emergencies. To address this gap, this paper presents a review of multidisciplinary literature to identify specific ethical principles applicable to MHPSS research in emergencies. DISCUSSION: Fifty-nine sources meeting the literature review inclusion criteria were analysed following a thematic synthesis approach. There was consensus on the relevance of universal ethical research principles to MHPSS research in emergencies, including norms of participant informed consent and protection; ensuring benefit arises from research participation; researcher neutrality, accountability, and safety; and the duty to ensure research is well designed and accounts for contextual factors in emergency settings. We go onto discuss unresolved issues by highlighting six current debates relating to the application of ethics in emergency settings: (1) what constitutes fair benefits?; (2) how should informed consent be operationalised?; (3) is there a role for decision making capacity assessments?; (4) how do risk management approaches impact upon the construction of ethical research?; (5) how can ethical reflection best be achieved?, and (6) are ethical review boards sufficiently representative and equipped to judge the ethical and scientific merit of emergency MHPSS research? Underlying these debates is a systemic tension between procedural ethics and ethics in practice. SUMMARY AND RECOMMENDATIONS: In summary, underpinning the literature is a desire to ensure the protection of participants exposed to emergencies and in need of evidence-based MHPSS. However, there is a lack of agreement on how to contextualise guidelines and procedures to effectively maximise the perspectives of researchers, participants and ethical review boards. This is a tension that the field must address to strengthen ethical MHPSS research in emergencies.
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spelling pubmed-52997032017-02-13 Ethical standards for mental health and psychosocial support research in emergencies: review of literature and current debates Chiumento, Anna Rahman, Atif Frith, Lucy Snider, Leslie Tol, Wietse A. Global Health Debate BACKGROUND: Research in emergencies is needed to understand the prevalence of mental health and psychosocial problems and strengthen the evidence base for interventions. All research - including operational needs assessments, programme monitoring and evaluation, and formal academic research - must be conducted ethically. While there is broad consensus on fundamental principles codified in research ethics guidelines, these do not address the ethical specificities of conducting mental health and psychosocial support (MHPSS) research with adults in emergencies. To address this gap, this paper presents a review of multidisciplinary literature to identify specific ethical principles applicable to MHPSS research in emergencies. DISCUSSION: Fifty-nine sources meeting the literature review inclusion criteria were analysed following a thematic synthesis approach. There was consensus on the relevance of universal ethical research principles to MHPSS research in emergencies, including norms of participant informed consent and protection; ensuring benefit arises from research participation; researcher neutrality, accountability, and safety; and the duty to ensure research is well designed and accounts for contextual factors in emergency settings. We go onto discuss unresolved issues by highlighting six current debates relating to the application of ethics in emergency settings: (1) what constitutes fair benefits?; (2) how should informed consent be operationalised?; (3) is there a role for decision making capacity assessments?; (4) how do risk management approaches impact upon the construction of ethical research?; (5) how can ethical reflection best be achieved?, and (6) are ethical review boards sufficiently representative and equipped to judge the ethical and scientific merit of emergency MHPSS research? Underlying these debates is a systemic tension between procedural ethics and ethics in practice. SUMMARY AND RECOMMENDATIONS: In summary, underpinning the literature is a desire to ensure the protection of participants exposed to emergencies and in need of evidence-based MHPSS. However, there is a lack of agreement on how to contextualise guidelines and procedures to effectively maximise the perspectives of researchers, participants and ethical review boards. This is a tension that the field must address to strengthen ethical MHPSS research in emergencies. BioMed Central 2017-02-08 /pmc/articles/PMC5299703/ /pubmed/28178981 http://dx.doi.org/10.1186/s12992-017-0231-y Text en © The Author(s). 2017 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Debate
Chiumento, Anna
Rahman, Atif
Frith, Lucy
Snider, Leslie
Tol, Wietse A.
Ethical standards for mental health and psychosocial support research in emergencies: review of literature and current debates
title Ethical standards for mental health and psychosocial support research in emergencies: review of literature and current debates
title_full Ethical standards for mental health and psychosocial support research in emergencies: review of literature and current debates
title_fullStr Ethical standards for mental health and psychosocial support research in emergencies: review of literature and current debates
title_full_unstemmed Ethical standards for mental health and psychosocial support research in emergencies: review of literature and current debates
title_short Ethical standards for mental health and psychosocial support research in emergencies: review of literature and current debates
title_sort ethical standards for mental health and psychosocial support research in emergencies: review of literature and current debates
topic Debate
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5299703/
https://www.ncbi.nlm.nih.gov/pubmed/28178981
http://dx.doi.org/10.1186/s12992-017-0231-y
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