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Perceived quality of life among caregivers of children with a childhood-onset dystrophinopathy: a double ABCX model of caregiver stressors and perceived resources

BACKGROUND: Duchenne and Becker muscular dystrophies, collectively referred to as dystrophinopathies, are recessive X-linked disorders characterized by progressive muscle weakness and ultimately cardiac and respiratory failure. Immediate family members are often primary caregivers of individuals wit...

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Detalles Bibliográficos
Autores principales:	Frishman, Natalia, Conway, Kristin Caspers, Andrews, Jennifer, Oleson, Jacob, Mathews, Katherine, Ciafaloni, Emma, Oleszek, Joyce, Lamb, Molly, Matthews, Dennis, Paramsothy, Pangaja, McKirgan, Lowell, Romitti, Paul
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2017
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5303295/ https://www.ncbi.nlm.nih.gov/pubmed/28187773 http://dx.doi.org/10.1186/s12955-017-0612-1

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