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Eliciting Preferences on Secondary Findings: The Preferences Instrument for Genomic Secondary Results (PIGSR)
PURPOSE: Eliciting and understanding patient and research participant preferences regarding return of secondary test results is a key aspect of genomic medicine. A valid instrument should be easily understood without extensive pre-test counseling, while still faithfully eliciting patients’ preferenc...
Autores principales: | Brothers, Kyle B., East, Kelly M., Kelley, Whitley V., Frances Wright, M., Westbrook, Matthew J., Rich, Carla A., Bowling, Kevin M., Lose, Edward J., Martina Bebin, E., Simmons, Shirley, Myers, John A., Barsh, Greg, Myers, Richard M., Cooper, Greg M., Pulley, Jill M., Rothstein, Mark A., Wright Clayton, Ellen |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
2016
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5326612/ https://www.ncbi.nlm.nih.gov/pubmed/27561086 http://dx.doi.org/10.1038/gim.2016.110 |
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