Cargando…
An assessment of the quality of the I-DSD and the I-CAH registries - international registries for rare conditions affecting sex development
BACKGROUND: With the proliferation of rare disease registries, there is a need for registries to undergo an assessment of their quality against agreed standards to ensure their long-term sustainability and acceptability.This study was performed to evaluate the I-DSD and I-CAH Registries and identify...
| Autores principales: | , , , , , |
|---|---|
| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2017
|
| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5360059/ https://www.ncbi.nlm.nih.gov/pubmed/28320446 http://dx.doi.org/10.1186/s13023-017-0603-7 |