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Discordance in selected designee for return of genomic findings in the event of participant death and estate executor
BACKGROUND: Legal and ethical questions arise regarding disseminating genetic research results to family members in the event of a research participant's death; failure to return or return to legal next of kin or estate executor may not reflect participant desires. We sought to determine partic...
Autores principales: | Goodman, Jessie L., Amendola, Laura M., Horike‐Pyne, Martha, Trinidad, Susan B., Fullerton, Stephanie M., Burke, Wylie, Jarvik, Gail P. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2017
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5370224/ https://www.ncbi.nlm.nih.gov/pubmed/28361104 http://dx.doi.org/10.1002/mgg3.274 |
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