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Access Barriers to Services by Immigrant Mothers of Children with Autism in Canada

Equal access for autism services remains suboptimal for diverse groups. In Canada, little is known about the barriers immigrant mothers face accessing services and support for their children with developmental disabilities. In this qualitative study, 21 immigrant mothers of children with Autism, fro...

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Detalles Bibliográficos
Autores principales: Khanlou, Nazilla, Haque, Nasim, Mustafa, Nida, Vazquez, Luz Maria, Mantini, Anne, Weiss, Jonathan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5378730/
https://www.ncbi.nlm.nih.gov/pubmed/28424567
http://dx.doi.org/10.1007/s11469-017-9732-4
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author Khanlou, Nazilla
Haque, Nasim
Mustafa, Nida
Vazquez, Luz Maria
Mantini, Anne
Weiss, Jonathan
author_facet Khanlou, Nazilla
Haque, Nasim
Mustafa, Nida
Vazquez, Luz Maria
Mantini, Anne
Weiss, Jonathan
author_sort Khanlou, Nazilla
collection PubMed
description Equal access for autism services remains suboptimal for diverse groups. In Canada, little is known about the barriers immigrant mothers face accessing services and support for their children with developmental disabilities. In this qualitative study, 21 immigrant mothers of children with Autism, from a diverse ethno cultural background, were interviewed in Toronto, Canada. We apply House’s (1981) four domains of social support to analyze findings. Structural support challenges, such as delays in diagnosis, fragmented and dispersed services were common, followed by instrumental challenges due to loss of social ties and stigma. Lack of expected support from partners, and negative perceptions of services, were identified as emotional and perceptive challenges. Focused attention is required to address inequalities within the context of current access pathways for autism.
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spelling pubmed-53787302017-04-17 Access Barriers to Services by Immigrant Mothers of Children with Autism in Canada Khanlou, Nazilla Haque, Nasim Mustafa, Nida Vazquez, Luz Maria Mantini, Anne Weiss, Jonathan Int J Ment Health Addict Original Article Equal access for autism services remains suboptimal for diverse groups. In Canada, little is known about the barriers immigrant mothers face accessing services and support for their children with developmental disabilities. In this qualitative study, 21 immigrant mothers of children with Autism, from a diverse ethno cultural background, were interviewed in Toronto, Canada. We apply House’s (1981) four domains of social support to analyze findings. Structural support challenges, such as delays in diagnosis, fragmented and dispersed services were common, followed by instrumental challenges due to loss of social ties and stigma. Lack of expected support from partners, and negative perceptions of services, were identified as emotional and perceptive challenges. Focused attention is required to address inequalities within the context of current access pathways for autism. Springer US 2017-01-17 2017 /pmc/articles/PMC5378730/ /pubmed/28424567 http://dx.doi.org/10.1007/s11469-017-9732-4 Text en © The Author(s) 2017 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
spellingShingle Original Article
Khanlou, Nazilla
Haque, Nasim
Mustafa, Nida
Vazquez, Luz Maria
Mantini, Anne
Weiss, Jonathan
Access Barriers to Services by Immigrant Mothers of Children with Autism in Canada
title Access Barriers to Services by Immigrant Mothers of Children with Autism in Canada
title_full Access Barriers to Services by Immigrant Mothers of Children with Autism in Canada
title_fullStr Access Barriers to Services by Immigrant Mothers of Children with Autism in Canada
title_full_unstemmed Access Barriers to Services by Immigrant Mothers of Children with Autism in Canada
title_short Access Barriers to Services by Immigrant Mothers of Children with Autism in Canada
title_sort access barriers to services by immigrant mothers of children with autism in canada
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5378730/
https://www.ncbi.nlm.nih.gov/pubmed/28424567
http://dx.doi.org/10.1007/s11469-017-9732-4
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