Development of the SIOPE DIPG network, registry and imaging repository: a collaborative effort to optimize research into a rare and lethal disease

Diffuse intrinsic pontine glioma (DIPG) is a rare and deadly childhood malignancy. After 40 years of mostly single-center, often non-randomized trials with variable patient inclusions, there has been no improvement in survival. It is therefore time for international collaboration in DIPG research, t...

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Detalles Bibliográficos
Autores principales: Veldhuijzen van Zanten, Sophie E. M., Baugh, Joshua, Chaney, Brooklyn, De Jongh, Dennis, Sanchez Aliaga, Esther, Barkhof, Frederik, Noltes, Johan, De Wolf, Ruben, Van Dijk, Jet, Cannarozzo, Antonio, Damen-Korbijn, Carin M., Lieverst, Jan A., Colditz, Niclas, Hoffmann, Marion, Warmuth-Metz, Monika, Bison, Brigitte, Jones, David T. W., Sturm, Dominik, Gielen, Gerrit H., Jones, Chris, Hulleman, Esther, Calmon, Raphael, Castel, David, Varlet, Pascale, Giraud, Géraldine, Slavc, Irene, Van Gool, Stefaan, Jacobs, Sandra, Jadrijevic-Cvrlje, Filip, Sumerauer, David, Nysom, Karsten, Pentikainen, Virve, Kivivuori, Sanna-Maria, Leblond, Pierre, Entz-Werle, Natasha, von Bueren, Andre O., Kattamis, Antonis, Hargrave, Darren R., Hauser, Péter, Garami, Miklos, Thorarinsdottir, Halldora K., Pears, Jane, Gandola, Lorenza, Rutkauskiene, Giedre, Janssens, Geert O., Torsvik, Ingrid K., Perek-Polnik, Marta, Gil-da-Costa, Maria J., Zheludkova, Olga, Shats, Liudmila, Deak, Ladislav, Kitanovski, Lidija, Cruz, Ofelia, Morales La Madrid, Andres, Holm, Stefan, Gerber, Nicolas, Kebudi, Rejin, Grundy, Richard, Lopez-Aguilar, Enrique, Zapata-Tarres, Marta, Emmerik, John, Hayden, Tim, Bailey, Simon, Biassoni, Veronica, Massimino, Maura, Grill, Jacques, Vandertop, William P., Kaspers, Gertjan J. L., Fouladi, Maryam, Kramm, Christof M., van Vuurden, Dannis G.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2017
Materias:
Clinical Study
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5378734/
https://www.ncbi.nlm.nih.gov/pubmed/28110411
http://dx.doi.org/10.1007/s11060-016-2363-y

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