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Smart homes, private homes? An empirical study of technology researchers’ perceptions of ethical issues in developing smart-home health technologies

BACKGROUND: Smart-home technologies, comprising environmental sensors, wearables and video are attracting interest in home healthcare delivery. Development of such technology is usually justified on the basis of the technology’s potential to increase the autonomy of people living with long-term cond...

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Autores principales: Birchley, Giles, Huxtable, Richard, Murtagh, Madeleine, ter Meulen, Ruud, Flach, Peter, Gooberman-Hill, Rachael
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2017
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5379767/
https://www.ncbi.nlm.nih.gov/pubmed/28376811
http://dx.doi.org/10.1186/s12910-017-0183-z
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author Birchley, Giles
Huxtable, Richard
Murtagh, Madeleine
ter Meulen, Ruud
Flach, Peter
Gooberman-Hill, Rachael
author_facet Birchley, Giles
Huxtable, Richard
Murtagh, Madeleine
ter Meulen, Ruud
Flach, Peter
Gooberman-Hill, Rachael
author_sort Birchley, Giles
collection PubMed
description BACKGROUND: Smart-home technologies, comprising environmental sensors, wearables and video are attracting interest in home healthcare delivery. Development of such technology is usually justified on the basis of the technology’s potential to increase the autonomy of people living with long-term conditions. Studies of the ethics of smart-homes raise concerns about privacy, consent, social isolation and equity of access. Few studies have investigated the ethical perspectives of smart-home engineers themselves. By exploring the views of engineering researchers in a large smart-home project, we sought to contribute to dialogue between ethics and the engineering community. METHODS: Either face-to-face or using Skype, we conducted in-depth qualitative interviews with 20 early- and mid-career smart-home researchers from a multi-centre smart-home project, who were asked to describe their own experience and to reflect more broadly about ethical considerations that relate to smart-home design. With participants’ consent, interviews were audio-recorded, transcribed and analysed using a thematic approach. RESULTS: Two overarching themes emerged: in ‘Privacy’, researchers indicated that they paid close attention to negative consequences of potential unauthorised information sharing in their current work. However, when discussing broader issues in smart-home design beyond the confines of their immediate project, researchers considered physical privacy to a lesser extent, even though physical privacy may manifest in emotive concerns about being watched or monitored. In ‘Choice’, researchers indicated they often saw provision of choice to end-users as a solution to ethical dilemmas. While researchers indicated that choices of end-users may need to be restricted for technological reasons, ethical standpoints that restrict choice were usually assumed and embedded in design. CONCLUSIONS: The tractability of informational privacy may explain the greater attention that is paid to it. However, concerns about physical privacy may reduce acceptability of smart-home technologies to future end-users. While attention to choice suggests links with privacy, this may misidentify the sources of privacy and risk unjustly burdening end-users with problems that they cannot resolve. Separating considerations of choice and privacy may result in more satisfactory treatment of both. Finally, through our engagement with researchers as participants this study demonstrates the relevance of (bio)ethics as a critical partner to smart-home engineering. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (doi:10.1186/s12910-017-0183-z) contains supplementary material, which is available to authorized users.
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spelling pubmed-53797672017-04-10 Smart homes, private homes? An empirical study of technology researchers’ perceptions of ethical issues in developing smart-home health technologies Birchley, Giles Huxtable, Richard Murtagh, Madeleine ter Meulen, Ruud Flach, Peter Gooberman-Hill, Rachael BMC Med Ethics Research Article BACKGROUND: Smart-home technologies, comprising environmental sensors, wearables and video are attracting interest in home healthcare delivery. Development of such technology is usually justified on the basis of the technology’s potential to increase the autonomy of people living with long-term conditions. Studies of the ethics of smart-homes raise concerns about privacy, consent, social isolation and equity of access. Few studies have investigated the ethical perspectives of smart-home engineers themselves. By exploring the views of engineering researchers in a large smart-home project, we sought to contribute to dialogue between ethics and the engineering community. METHODS: Either face-to-face or using Skype, we conducted in-depth qualitative interviews with 20 early- and mid-career smart-home researchers from a multi-centre smart-home project, who were asked to describe their own experience and to reflect more broadly about ethical considerations that relate to smart-home design. With participants’ consent, interviews were audio-recorded, transcribed and analysed using a thematic approach. RESULTS: Two overarching themes emerged: in ‘Privacy’, researchers indicated that they paid close attention to negative consequences of potential unauthorised information sharing in their current work. However, when discussing broader issues in smart-home design beyond the confines of their immediate project, researchers considered physical privacy to a lesser extent, even though physical privacy may manifest in emotive concerns about being watched or monitored. In ‘Choice’, researchers indicated they often saw provision of choice to end-users as a solution to ethical dilemmas. While researchers indicated that choices of end-users may need to be restricted for technological reasons, ethical standpoints that restrict choice were usually assumed and embedded in design. CONCLUSIONS: The tractability of informational privacy may explain the greater attention that is paid to it. However, concerns about physical privacy may reduce acceptability of smart-home technologies to future end-users. While attention to choice suggests links with privacy, this may misidentify the sources of privacy and risk unjustly burdening end-users with problems that they cannot resolve. Separating considerations of choice and privacy may result in more satisfactory treatment of both. Finally, through our engagement with researchers as participants this study demonstrates the relevance of (bio)ethics as a critical partner to smart-home engineering. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (doi:10.1186/s12910-017-0183-z) contains supplementary material, which is available to authorized users. BioMed Central 2017-04-04 /pmc/articles/PMC5379767/ /pubmed/28376811 http://dx.doi.org/10.1186/s12910-017-0183-z Text en © The Author(s). 2017 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research Article
Birchley, Giles
Huxtable, Richard
Murtagh, Madeleine
ter Meulen, Ruud
Flach, Peter
Gooberman-Hill, Rachael
Smart homes, private homes? An empirical study of technology researchers’ perceptions of ethical issues in developing smart-home health technologies
title Smart homes, private homes? An empirical study of technology researchers’ perceptions of ethical issues in developing smart-home health technologies
title_full Smart homes, private homes? An empirical study of technology researchers’ perceptions of ethical issues in developing smart-home health technologies
title_fullStr Smart homes, private homes? An empirical study of technology researchers’ perceptions of ethical issues in developing smart-home health technologies
title_full_unstemmed Smart homes, private homes? An empirical study of technology researchers’ perceptions of ethical issues in developing smart-home health technologies
title_short Smart homes, private homes? An empirical study of technology researchers’ perceptions of ethical issues in developing smart-home health technologies
title_sort smart homes, private homes? an empirical study of technology researchers’ perceptions of ethical issues in developing smart-home health technologies
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5379767/
https://www.ncbi.nlm.nih.gov/pubmed/28376811
http://dx.doi.org/10.1186/s12910-017-0183-z
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