Household financial burden of phenylketonuria and its impact on treatment in China: a cross-sectional study

BACKGROUND: Phenylketonuria (PKU) is a rare inborn disease, which, untreated, leading to severe neurobehavioral dysfunction. Considering its complexity, the management of PKU may bring a formidable economic burden to parents and caregivers. It is still unknown what the out-of-pocket expenses are for...

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Detalles Bibliográficos
Autores principales: Wang, Lin, Zou, Hui, Ye, Fang, Wang, Kundi, Li, Xiaowen, Chen, Zhihua, Chen, Jie, Han, Bingjuan, Yu, Weimin, He, Chun, Shen, Ming
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Netherlands 2016
Materias:
Original Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5393103/
https://www.ncbi.nlm.nih.gov/pubmed/27832415
http://dx.doi.org/10.1007/s10545-016-9995-0

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5393103/
https://www.ncbi.nlm.nih.gov/pubmed/27832415
http://dx.doi.org/10.1007/s10545-016-9995-0

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