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Household financial burden of phenylketonuria and its impact on treatment in China: a cross-sectional study
BACKGROUND: Phenylketonuria (PKU) is a rare inborn disease, which, untreated, leading to severe neurobehavioral dysfunction. Considering its complexity, the management of PKU may bring a formidable economic burden to parents and caregivers. It is still unknown what the out-of-pocket expenses are for...
Autores principales: | Wang, Lin, Zou, Hui, Ye, Fang, Wang, Kundi, Li, Xiaowen, Chen, Zhihua, Chen, Jie, Han, Bingjuan, Yu, Weimin, He, Chun, Shen, Ming |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer Netherlands
2016
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5393103/ https://www.ncbi.nlm.nih.gov/pubmed/27832415 http://dx.doi.org/10.1007/s10545-016-9995-0 |
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