Capture-recapture methodology to study rare conditions using surveillance data for fragile X syndrome and muscular dystrophy

BACKGROUND: Rare conditions can be catastrophic for families and the implications for public health can be substantial. Our study compared basic surveillance through active medical record review with a linked administrative data file to assess the number of cases of two rare conditions, fragile X sy...

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Detalles Bibliográficos
Autores principales: Smith, Michael G., Royer, Julie, Mann, Joshua, McDermott, Suzanne, Valdez, Rodolfo
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2017
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5399384/
https://www.ncbi.nlm.nih.gov/pubmed/28427448
http://dx.doi.org/10.1186/s13023-017-0628-y

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