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Benefit-sharing: an inquiry regarding the meaning and limits of the concept in human genetic research

The Human Genome Project and the related research and development activities have raised heated discussions around some very basic ethical and social issues. A much debated concern is that of justice in human genetic research and in possible applications, especially pertaining to questions of just b...

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Detalles Bibliográficos
Autor principal: Simm, Kadri
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2005
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5424952/
http://dx.doi.org/10.1186/1746-5354-1-2-29
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author Simm, Kadri
author_facet Simm, Kadri
author_sort Simm, Kadri
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description The Human Genome Project and the related research and development activities have raised heated discussions around some very basic ethical and social issues. A much debated concern is that of justice in human genetic research and in possible applications, especially pertaining to questions of just benefit-sharing - who and based on what sort of argumentation has the right to require benefits arising from research and discoveries, and what can even be considered as benefits? In what follows I will be examining and clarifying the notion of benefit-sharing by focusing on its justifications. I will argue for certain qualifications and limitations in using this concept in specific and universal contexts.
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spelling pubmed-54249522017-05-16 Benefit-sharing: an inquiry regarding the meaning and limits of the concept in human genetic research Simm, Kadri Genom Soc Policy Article The Human Genome Project and the related research and development activities have raised heated discussions around some very basic ethical and social issues. A much debated concern is that of justice in human genetic research and in possible applications, especially pertaining to questions of just benefit-sharing - who and based on what sort of argumentation has the right to require benefits arising from research and discoveries, and what can even be considered as benefits? In what follows I will be examining and clarifying the notion of benefit-sharing by focusing on its justifications. I will argue for certain qualifications and limitations in using this concept in specific and universal contexts. Springer Berlin Heidelberg 2005-08-15 /pmc/articles/PMC5424952/ http://dx.doi.org/10.1186/1746-5354-1-2-29 Text en © ESRC Genomics Network 2005
spellingShingle Article
Simm, Kadri
Benefit-sharing: an inquiry regarding the meaning and limits of the concept in human genetic research
title Benefit-sharing: an inquiry regarding the meaning and limits of the concept in human genetic research
title_full Benefit-sharing: an inquiry regarding the meaning and limits of the concept in human genetic research
title_fullStr Benefit-sharing: an inquiry regarding the meaning and limits of the concept in human genetic research
title_full_unstemmed Benefit-sharing: an inquiry regarding the meaning and limits of the concept in human genetic research
title_short Benefit-sharing: an inquiry regarding the meaning and limits of the concept in human genetic research
title_sort benefit-sharing: an inquiry regarding the meaning and limits of the concept in human genetic research
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5424952/
http://dx.doi.org/10.1186/1746-5354-1-2-29
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